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    Donate to the £55k fundraiser for a UK #MEAction organiser!

    donated and placed on fb . it seems the uk needs some American style advocacy a little more in the face of a very uncaring establishment.
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    Fecal transplants in ME/CFS

    where are they hunting these feral implants lol .thanks for making me smile .
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    We bought a house!:)

    congratulations I hope your new home brings you much joy and tranquillity . it is always nice to see good news .
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    Neuroscience News: Is a Stress Shot on the Horizon?

    way to simplistic biochemistry that has taken millions of years to develop can not be simplified to this extent by wishful thinking . stress is a natural part of living who knows how many serious complications will arise from tinkering with one or two different pathways. we need a far more...
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    NHS: The Improving Access to Psychological Therapies Manual, June 2018

    imo this is the states way of replacing a crumbling not fit for service system with a much worse system with the primary purpose of cutting costs and benefits to anyone unfortunate enough to have long term illnesses that they can imply has having a mental health component . the same old right...
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    Gut microbiota regulates maturation of the adult enteric nervous system via enteric serotonin networks, 2018, De Vadder et al

    hopefully this kind of research will prevent the further psychologising of people with ill defined ibs symptoms the stomach and digestive track are far more complex than was previously thought .
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    Is there an optimum bedtime to maximise growth hormone?

    I agree it does not seem likely given altered cortisol production and also altered circadian rhythms . spending a long time in bed staring at the ceiling waiting for your body and brain to agree on its time to sleep is not fun . I spent more than a decade trying to fit in to a proper day night...
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    Current Concepts in Diagnosis and Treatment of Functional Neurological Disorders, Espay et al, 2018

    this is just the distorted reasoning for empire building . tell me of any one doing extreme physical task who does not get shaking in the effected muscles . as far as facial tick are concerned there are potentially many reasons for them I had trigeminal nerve pain for nearly a decade that caused...
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    Chronic Illness Inclusion Blog post: It’s not ME, it’s you – can the chronically ill embrace the social model?

    social model sounds good but remember many right wing politicians believe there is no such thing as society . margeret thatcher was quoted as saying/believing this . politicians with similar views know divide and conquer strats will get them of the hook for short periods of time so todays...
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    Re-framing GET as pacing, or vice-versa

    Nellie pledge it might be worth googling other m e charities there could already be a good information pamphlet on proper pacing possibly with heart rate monitoring already published . it would save you from the constant anger at their ridiculous jobsworth attitudes to people with complex...
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    What Doctors Don’t Tell You: ME: the cure that went away

    not completely factual especially the amount of money spent by the dwp . I would like the fraudsters involved put before a proper court but I do not think it will happen whilst articles like this are printed . you cannot argue against bad nonscience with poor non factual articles .
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    Wellcome inviting early career researchers... applications by June 17th

    how about research into why so many poorly designed and interpreted papers are published and seem to further the careers of their authors .
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    First 3D printed human corneas

    thank you forbin laugh out loud moments are so welcome.
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    Power Causes Brain Damage

    I have always liked the saying that those who want power are always the least deserving of it . bad people will always abuse whatever power they have . life experience will tell you this without the need for studies . history of governments and rulers of all stripes shows that people who feel...
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    'Love Means Never Having to Say... Anything' - moving NYT article by PWME Jamison Hill (25 May 2018)

    so very heart warming. wonderfully brave writing . and of course heart breaking too. thanks sasha for bringing this to our attention.
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    "Is fatigue a disease-specific or generic symptom in chronic medical conditions?" (Dutch CBT proponents involved)

    waffle probably based on the many tons of ppp this particular industry mistakes forscience
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    Medical abuse Facebook group for with ME to post stories

    since they wont be counted as properly filed complaints I don't think c geradas will lose any sleep .lol
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    Insufficient sleep, even without extended wakefulness, leads to performance impairments

    this reminds me of studies in the late seventies early eighties that led to restricting the hours of professional drivers and the installation of tachographs in trucks/lorries . I wonder how many of the recent papers are just a rehash of older ideas studies .
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