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    Psychiatric symptomatology in skin-restricted lupus patients without axis I psychiatric disorders: A post-hoc analysis 2023 Rondepierre et al

    it is not about evidence gathering just an attempt at empire building by creating their own so called evidence.
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    The Conners Continuous Performance Test CPT3™: Is it a reliable marker to predict neurocognitive dysfunction in ME/CFS ? 2023, Fernandez-Quiros et al

    I loathe captchas on any logins even with good eye sight the images can be very poor quality and sometimes do not have the wanted item in any image.
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    Non-pharmacological interventions for self-management of fatigue in adults: An umbrella review of potential interventions... 2023 Brown et al

    some one forgot to tell them that abstracts are no more reliable than advertising blurb on book covers or video games. makes their work worthless .
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    Ingestible Sensor Could Help Diagnose Gastrointestinal Motility Disorders

    i remember many years ago a camera in pill form was supposed to revolutionise gastric diagnostics . what happened to that.
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    Potential molecular mechanisms of chronic fatigue in long haul COVID and other viral diseases 2023 Peterson, Roy et al

    I wish they would clarify the depression is situational ie a downstream effect of having your life suddenly altered for the worse . as for anxiety does that word have any clear meaning to anyone .
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    Long Covid in the media and social media 2022

    _____This is a primer for reducing access to benefits no access to benefits means more sick people suffering since very few companies will actually want to employ them with the concessions required costing time and money so just another excuse to reduce the costs of benefits.
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    What Does It Mean to Really, Truly Rest?

    Who can truly rest in the modern age we live in even with the very much begrudged financial support from government agencies . I find it very difficult to truly rest as in lying still in bed trying to sleep needing to be distracted from pain and nausea means finding something other than rest .
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    UK brain banks that accept ME/CFS donors

    considering the organ retention scandal here in the U K .I would not trust any organ bank they have had various human tissues stored for decades most are just left to rot as if medical science has had zero interest in discovering the vast amount of knowledge that is still hidden about the human...
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    The gathering storm: The transformative impact of inflation on the healthcare sector

    Mkinsey are a bit slow of the mark . The N H S in the U k have deliberately been short staffed for decades politics and costs has consistently kept the numbers of training places and jobs down . This was always destined to cause unnecessary loss of life and human suffering .
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    A meta-ethnographic synthesis of the experiences of stigma amongst people with functional neurological disorder 2022 Foley, Kirkby and Eccles

    why did they mention healthcare last when medical failure is the primary source of all stigmatisation of patient groups .
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    Psychological and Cognitive Effects of Long COVID: A Narrative Review Focusing on the Assessment and Rehabilitative Approach 2022 de Luca et al

    Why did they add depression it took me 18 months of visiting doctors to realise they were clueless and would not be of any help. when that reality kicked in i was situationally depressed short term absolutely nothing like the very severe depressive illnesses that many people have to endure .
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    Somerset NHS: Long term Health conditions (incl MUS)

    Just who is paid to write this rubbish M U S is not a condition it is simply a lack of proper investigation and diagnosis. Also a lack of actual knowledge where are the bright and enquiring minds within the medical profession demanding far more research into basic human physiology . Oh yes it...
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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Done . I also get e mails and letters . If some one who doesn't know me goes through my effects they might think Berkley was my old college .
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    Differences in outcomes after total hip arthroplasty for osteoarthritis between pts with and without CS syndromes other than FM, 2022, Ohashi et al

    central sensitisation is still just an unproven theory it infuriates me that so called academics and researchers continually write as if this is a proven fact .
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    Is PEM a crash? Is a crash PEM? Semantically distinct? Or distinct phenomena?

    I see pem as a more short term thing three to five days of significant worsening of symptoms a crash on the other hand leads to a major drop in functioning for a lengthier period of time five years and counting since i was tipped into severe .
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    Human adaptation to immobilization: Novel insights of impacts on glucose disposal and fuel utilization, 2022, Schur et al

    Are they ignoring the reason a person is made bedbound in the first place . I am fed up with assumptions being made to suit the bias of researchers .
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    How to talk to doctors in order for them to work for us

    I would not take the time or waste my energy on a symptom diary one look at a doctors face when you have a short list of symptoms that are giving you enough grief to actually want to discuss them with your gp s enough not to ever bother again . with our gp practice you are expected to book an...
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