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Yes, I don't know why Steve Topple has lumped your survey in with the DWP one as problematic @JellyBabyKid. A btl poster on Benefits and Work is a constituent of Jo Platt and had contacted her about the benefits cuts. That poster said J P was very supportive of the cuts and it had been a waste...

That said, I did get points for going to the loo and taking medication which got me over line for enhanced DL.

@Tom Kindlon reposted this. https://bsky.app/profile/tomkindlon.bsky.social/post/3llsbu5mhes2o The poster has a friend who's a PIP assessor. PwME and LC unlikely to receive points other than cooking,washing and dressing. It's really bad, but at least we know what we are up against.

This is beyond horrible.

Really good, @Robert 1973 and Hutan's suggestions. Is it worth mentioning the international reach of the petition?

I think this would be worth doing. A parliamentary question gets it on the official record, and politicians and the public would see that Cochrane hasn't acted professionally, fairly or within its remit, without necessarily having to have knowledge of the specifics. Might also be worth asking...

https://bsky.app/profile/naomidharvey.bsky.social Cats with H5N1 in LA.

Excellent reporting from RiffReporter as well as David Tuller's article. It's shocking but not surprising. At least it's evidence of the suspected influence of the bpsers - White, Sharpe and Garner. What are Cochrane thinking? Rather than getting "conflict fatigue" they should have recognised...

It's interesting too that there's a marked difference at baseline between the GET and AM groups who attended 2 or less sessions. The AM group slightly better than the participants as a whole, while GET group is a lot worse. Maybe just due to chance, but could be a different dynamic in not...

There's a update email on the petition this morning. In addition to the IAG's letter they reference an article by Retraction Watch - Retraction Watch's article Retraction Watch acts as a watchdog of scientific integrity by monitoring the retraction processes of academic papers. It published...

Absolutely, Kitty. I wasn't criticising anyone, just saying how difficult it is for groups serving smaller populations to keep going. Yes, Trish. I think pretty much anything submitted to the newsletter was printed. I'm looking at an edition from 2022. There's reports on implementation of the...

I think the problem local groups have isn't so much funding as lack of people to fill the necessary roles. The Edinburgh group edmesh (which was affiliated to AfME) went bust recently for that reason. The annual membership fee was kept at £10 for decades. Many years ago I was at an edmesh...

I agree wholeheartedly with all of this. It's just not worth endangering the occasional contact we still have with a small number of people by asking them for donations. It's odd that no one I have rare contact with seems to think I'm very ill or not involved in normal activities, although...

Guardian article on compassion fatigue in GPs - https://www.theguardian.com/society/2025/jan/02/seven-in-10-gps-in-uk-suffer-from-compassion-fatigue-survey-finds certainly an important issue in an overworked, resource constrained sector, mentions also GPs feeling helpless to improve societal...

Fantastic. Thank you (as always) for writing this.

Excellent letter @Yann04

Another thing I noticed was that smoking/vaping was seen in a surprising favourable light. Almost a signifier of a decent character. Life changed by catastrophic illness. Looking for information, mutual support and community with others who understand online. Obviously a wrong 'un. Puffing...

Also people with ME being fully dressed and their hair combed when someone unexpectedly turns up! Inigo is supposed to have just been 'napping' but he's dressed including a BUTTONED shirt. I've watched most of it and I'm not sure the plot makes sense. Some of the characters, including Kea, only...

I think the Kea part has been improved from the book. From what I've read, in it she's stroppy and slamming doors. On tv she seems sick and sad and it's quite sympathetic. On the other hand her suddenly leaving the house implies she's faking it, like Inigo, though she's not shown sprinting away...

The Office of National Statistics is supposed to be neutral, producing data (in this case seemingly very poorly) that can be used both to devise policy and scrutinise it. The point of the article I first linked to and quoted from by John Pring of the Disability News Service is that increasing...