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The patients' responses are thoughtful, and if the researchers took them properly into consideration, they would learn something. However, it doesn't look at the CFQ's usefulness overall in evaluating fatigue and distinguishing fatigue from depression/anxiety. Also, no recognition of the need to...

I'm going to report something that happened to me, because it may happen to others and because it's weird. My esa payments stopped being paid. When I phoned the DWP they said because their software is old it can only hold so much data. When claims become overloaded they stop issuing payments...

I always have a headache of some kind, varying from fairly mild background ones to murderous. A doctor who asked me to describe them said they were migraine type, but I didn't have auras then . When I first had an aura I saw a GP, but he didn't seem interested. My auras are rare, either orange...

There's a link from Claire Fox's Wikipedia page to a Sunday Times interview from 2006 with her & Fiona. Mentions Gemma, 2nd sister, only one adopted. Was then running an IT centre for women. I haven't read the full article as it's paywalled...

I've re-edited incorrectly 3 times. Over and out.

I agree @JemPD, I was shocked too, and ME/CFS rather than cfsing us. I don't like the description though - syndromes (plural) which seems to be a bps thing, to make it more vague. Yes it may end up being several different illnesses, but we don't know that. Plus the emphasis on pain, which isn't...

From Benefits and Work on the Severe Disability Group - https://www.benefitsandwork.co.uk/news/shambolic-severe-disability-group-assessment-system-revealed?comment_id=17257&utm_source=iContact&utm_medium=email&utm_campaign=benefits-and-work&utm_content=13+March+2024+Newsletter There is a...

Not caught up yet, but just wanted to apologise to @Paddler, @B_V & Sanna, for thinking participants were mildly affected or even that some didn't have ME, as seemed to be indicated by the results. You knowingly subjected yourself to great risks for the greater good, and suffered significant and...

I'm slowly catching up with this thread so may just be repeating what others have said, but this task is about calculating odds, not about how much energy a person can/is willing to spend. Surely "success" in the task is getting maximum reward for minimum effort. Also the task is cost free for a...

Thank you to @Amy101 and your mum, who was wonderful, although it must have been hard. This was great, it feels like a turning point. I'm very emotional and full of gratitude to all involved in making this piece

Going back to this about Nonrestorative sleep - my sleep is the opposite of this - deep, heavy, groggy, drugged, sometimes feverish. I have throughout my illness slept a lot, including during the day. Sometimes I've had 48 hours or more of sleep, only half-waking a few times to crawl to the loo...

Another way we've been harmed by the bps cabal is in the recording and recognition of symptoms. It's clear from what they say and do that they have no idea what this illness looks like. I don't know if they ever ask pwME about their symptoms but they certainly don't listen. The model in their...

This doesn't look good. They could have asked for feedback on the questionnaire rather than asking us to complete it. I don't like the severity levels. They've merged together severe and very severe. I'm about 95% bedbound but miles from the very severe, life-threatening end. And then they've...

Since the study's definition of full adherence was nothing of the kind & partial adherence could just be attending the introductory session, this is deeply unimpressive. If participation was genuinely voluntary, participants must have hoped this would work for them and be committed to it...

This is a pretty bold statement. I don't think the audience understands that all. I'm pretty sure Dragon's Den has invested in medical devices and treatments before (hopefully with sound evidence) and customers' decision to buy these things or services is at least in part based on the approval...

From BBC Complaints - Thank you for contacting us about Dragons’ Den, broadcast on 18th January. We received a number of complaints making the same or similar points and so in line with the BBC Complaints Framework we are sending the same response to everyone. Dragons’ Den is an...

I received this yesterday about my complaint to the BBC - This is an update from the BBC Complaints team. We wanted to let you know that we have referred your complaint to the relevant people and are still looking into it. We regret that it may take a little bit longer before we can reply...

How long will it take ASA to come to a ruling? I'm afraid it'll be too late to make a difference. Dragon's Den & the BBC seem unwilling to engage with us, even though they're backpedaling on causation, by changing various sites. I suspect they are willing to take the hit of an adverse judgement...

This was the GP - Correction - they didn't ask for prescriptions.

I've watched the section of the programme now. I've seen Dragon's Den before, although not for many years. The panel used to interrogate those pitching.They would have asked "does your product work", "what's your evidence for your claims", "who is it aimed at & would that market buy it"...