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I've submitted a complaint.

I'm doing the questionnaire now. I'm struggling a bit with the pacing question. It hasn't improved my symptoms, but on the other I'm sure I'd be worse without out so it hasn't had no effect. Also about PEM. I think I'm usually in rolling/layered PEM, but I've answered the questions about large...

It's probably possible to make a drama about almost subject. It's just finding the right way in to engage the audience & do it effectively. I don't know if it's relevant, but I'm thinking of this Imagine episode with Russell T Davis -...

@Trish wrote: Wouldn't it be amazing to have a really well done drama showing the devastation caused by GET for pwME. Snap, I came here to post that very thing. Some of the legal changes that are being talked about (belatedly) to curb the inordinate power the Post Office has, would surely...

Ugh. On BBC Parliament at the moment, a debate before Health and Social Care Committee on men's health. Witness - Anthony Davis, British Assoc of Counselling & Psychotherapy. Question from chair about exhaustion. Reply all about burnout & psych stuff.

The incidence of addressing PEM seems unexpectedly high (& maybe even more so in Norway). Recently there has been an small increase in clinics & studies mentioning PEM, but apart from serious biomedical researchers, there isn't a clear understanding of what it means. Clinics will say they are...

Sam Ray-Chaudhuri, a Research Economist at IFS and an author of the report, said: "The government proposes moving to a system where being unable to work will no longer directly confer any additional financial support from the benefits system. On the whole, this strengthens financial incentives...

Of course, @JellyBabyKid. I'm glad I thought of something useful, because I can see from what you & others have written that I've missed points out in my response. Yes, that's true, @Simbindi. I'm sorry you went through that. If PIP is means-tested, the right to an income disappears altogether...

Thanks @Simbindi & @JellyBabyKid for such good work against these terrible proposals. I did respond to the consultation about a week ago. It wasn't very good, but at least I expressed my objections. I messed up in that I typed quite a long reply to the first question & only then scrolled down to...

Benefits and Work have put together a page showing all the proposed changes to benefits/WCA. https://www.benefitsandwork.co.uk/universal-credit-uc/wca-changes-news?utm_source=iContact&utm_medium=email&utm_campaign=benefits-and-work&utm_content=V2+11+October+2023+Newsletter As a side issue, I...

My partner went for his flu jab, but also got the Covid one, because of me! It's weird that I didn't get it, but I'm pleased for him. It may also be the best outcome for me. He's my main (almost only) conduit with the outside world, so it'll lower chances of transmission, but also I'm not doing...

I don't think people should take Benefits & Work's worst case wca test. It'd be too distressing & the comments includes people who have taken it & wish they hadn't. As things stand, spending on Employment Support Allowance and Universal Credit health support is due to rise 13% in real terms –...

I wish you all the best, Josep. It's a nightmare. There was a whole lot more bad stuff yesterday. I'm not up to linking to it. I do wonder when they report mental health and musculo/skeletal problems issues as the main reasons for the increase in economic inactivity & sick leave. I don't...

The source they use for "work is good for you" is a paper by Gordon Waddell, associate of and co-author with Mansell Aylward. See Is work Good for your Health and Well-being? Waddell and Burton 2006 (GOV.UK) ↩

This is horrific. There is a consultation on this, but I can't find a date for end of submissions.

It's heads we win, tails you lose. Any & all personality types or traits they can shoehorn us into are signs of our wrongness, even if these are two diametrically opposed types/traits simultaneously. More generally, I always wonder if the BPS lot go through life without ever experiencing...

Yes, that's interesting, and shows that we can be exceeding our limits, even if we don't think we are. Several of them seem more severe than their designation & the woman described as mild seemed very unwell. I don't think it's always true that people who are designated as mild, because they...

Apart from all the points highlighted by the excellent analysis here, I've always been intensely irritated by the fact that Question 11 - How is your memory? is a different type of question from the others. It invites a narrative response, but is supposed to be scored as a value. "More than...

Thanks, Trish. I probably will mention the symptoms. They are nice at my GPs surgery, but in this case I think I'd prefer it if they fobbed me off & didn't refer me on. In a sane world, of course, I'd want a referral, but it's being so close to FND central that is giving me pause.

I'm in a quandary at the moment. I have an upcoming GP appointment which I made up about a new rash. I don't know whether I should mention other newish symptoms which I think are neurological. I've written about them on the Signs & Symptoms - Strange Sensations thread. I'm particularly worried...