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They learnt it wasn't effective and wasn't safe, they just didn't tell anyone.

That'll rule nearly all of us out then.

I was compelled to access CBT at a CFS clinic here via the phone because the clinic was such a long way from me, within just a few minutes of chatting on the first session I was told I didn't need CBT as I was doing okay as I was. So I think it is the case that not all CBT is the type you...

Starts just after 2:10:00 https://www.bbc.co.uk/programmes/p05y3tpw

I need an average of 12 hours sleep a night. Although I've just spent more or less the whole of last 7 days in bed asleep, 4 days fighting the flu, then another 3 days with the most painful headache ever. Lost half a stone, relieved to have come out the other side and back to just the ME poorly...

I met someone with that illness today, and then this pops up.

I don't know for sure of course, perhaps I'm unique, perhaps I have a different illness, perhaps I'm special, perhaps we're all the same. All I can say for certain is that it works for me and the science confirms what I thought must be happening with the Mitochondria. Although I did think it may...

The key for me has been tapping into the mitochondria boosting high intensity training, I did a bit of fairly high effort short duration sessions on my bicycle turbo-trainer, and instead of getting worse I was actually improving. I use hills now when I go for a walk. This article explains the...

I'd agree with this to some degree within the first 3 years of illness. However after that point I feel improvements can be made, but not in 6 months, more like 6 years.

I waited over two hours to be seen at my last ESA assessment because they book in more people than they can see, using that 25% not turning up rate, it nearly killed me. I was one of the last to go in, so all those waiting with me could have been there for an hour and a half and then got sent home.

I like this article too https://www.medicalnewstoday.com/articles/316229.php?sr I'm lucky I can do some interval training, it lessens the limitations the illness induces.

I've spent 10 years of my 12 year illness trying to get back to walking 20 miles in one go fairly comfortably, I'm at 5 miles now, and have settled at that for some time now, any more isn't really pleasurable. I choose to do a walk most days above anything else mainly because walking is and was...

Then there's the reason for feeling so unwell in the morning, all that mental expenditure the brain does, all the filing of memories, then all those vivid elaborate journeys and stories it takes you on, I actually remember a couple from last night, and two of the people in it date back to over...

I would never describe myself as disabled, ill yes, I wonder if a poll would reveal anything interesting about the ratio between those who describe themselves as disabled and those who describe themselves as ill ?

Just spotted this, am I correct in saying that if you are currently in the support group and at a reassessment are placed in the work related group you get the old rate of £102.15 ?

The payment rates are out of date now on the citizen advice site. I guess you can go from support to work related at any point, and even though you may have been ill for years, still be classed as a new claimant and awarded the new measly rate of just £73.10 ? :arghh: :mad...

Impossible to predict I'd say. I could do it and not suffer any permanent worsening, but I've been exercising for about 85% of the 12 year duration of my illness. I'd certainly think twice about doing it if I'd never done any exercise at that kind of intensity before, I'd want to test the water...