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  1. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    BACME infiltrated by alien forces...... AfME- shouldn't you decide to boycott this? Please answer? Rather than by attending which may will be construed as endorsement?
  2. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    BACME lecture delivered 3.15 Workshop choices: Wearable’s – Lucy Clark F. ????????? Quality and Research Innovation in practice interviews - Deb Roberts G A Behavioural therapy approach to Trauma-Informed Behaviour Therapy -Kirsty Northcott H. Dietetics TBC (see...
  3. Suffolkres

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    WHAT???!!!! You have to be joking......no, it is no joking matter. I think we need a thread which lists all the weasel worded ways (WWW) they invent to deliver a BSP bulls**t approach to justify their careers, approach and keep their money rolling in........
  4. Suffolkres

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Any news of when stakeholders will be sent draft?
  5. Suffolkres

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I watched a documentary about Jack Nicholson and his eyebrows.... and his ensuing behaviour and excesses! I would suggest any eyebrow work up will be asking for trouble!? I wish I had his energy to even think about an eyebrow raise let alone an excess.....
  6. Suffolkres

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Moved post. Quote from a poster on Facebook who linked the article below. 'If true and he doesn't turn round and do a Prof Garner on us, this is big news. I'll post more on the relevance of this later but Prof Mansel Aylward is one of the main promoter of the biopsychosocial model of illness...
  7. Suffolkres

    Blaming the victim, all over again: Waddell and Aylward’s biopsychosocial (BPS) model of disability, 2016, Shakespeare et al

    Moved post. Quote from a poster on Facebook who linked the article below. 'If true and he doesn't turn round and do a Prof Garner on us, this is big news. I'll post more on the relevance of this later but Prof Mansel Aylward is one of the main promoter of the biopsychosocial model of illness...
  8. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Well said, Trish. You speak for me..... I for one am tired to continue listening to a 'Devil's Advocate' interpretation and approach by others here. Although I concede initially in spirit of fairness, initially it may be necessary, after a while, especially after so many powerful views have...
  9. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Sorry for error. Sorry Doug Fraser! Doug Cross was the widower I met who's wife fell victim to the Camelford poisoning....( another WEaselly matter). (https://www.bbc.co.uk/news/uk-england-cornwall-44727036 6 July 2018Camelford water poisoning: Calls for new inquiry)...
  10. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Yes you are correct- the Wednesbury Unreasonable ground or argument. I'm not a fan of the concept of Judicial Review as an appeal- .... nor am I having taken one to the high court and being told by judge I was 'right' but not right enough for a flawed decision to be reversed! My JR was a...
  11. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    oh no it was Norfolk patient Kevin Short and Doug Cross. It was an enormous amount of work and everone pulled together, but the forces that be..... One was an eccentric other female patient (JB) who hi jacked the process and scuppered it in effect. Plus the Kev's QC wasn't up to the task...
  12. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    There is if there is failure of due process. I believe, if I remember correctly.... it's called Judicial Review..?
  13. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Perhaps his new persona involves mimicking a ventriloquist's dummy, or a puppet like Punch?... "That's the way to do it..."
  14. Suffolkres

    NICE ME/CFS guideline - submissions to the draft guideline consultation, December 2020

    https://25megroup.org/nice-guidelines https://25megroup.org/nice-guidelines?fbclid=IwAR2U4FU_O0OdYsNA9sB3oF6qTM-Lli87JEXU7rngOD8m18asMokUaLl0WXs
  15. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    The main impact will be on the decision making process at the new regional level- Joint Strategic Commissioning Process within each CCG Alliance or 'Sustainability & Transformation' planning mechanism. Patient Groups can involve local Health Overview and Scrutiny Committees to make sure the...
  16. Suffolkres

    Gulf War Illness - causes

    'While the exposure to sarin gas from the Iraqi enemy most likely is to blame for the Gulf War Syndrome, the researchers also say the liberal use of pesticides as insect repellent may also have been an 'own goal' and compounded the damage from sarin gas and contributed to the prevalence of the...
  17. Suffolkres

    Gulf War Illness - causes

    =AT25vxMZOC9yc2g7Plhs8S0Nodsy-Nbl5GfAPCIfkD5f_4dp1UvDI1FrEMp0re0Q6-UOr-hZgSynCHGySnIJ1ZILhDkUBnu8tTnApZnMYyfKVA4Kreex68tDR1ntF4S1F2VrfYqXVzNX6jW9SSQrVz_bkds']https://www.dailymail.co.uk/.../Gulf-War-syndrome-not... Gulf War syndrome which left 250,000 veterans suffering long-term fatigue and...
  18. Suffolkres

    ExFACTR Study: Exploring the Feasibility of ACT for Children and young people with CFS/ME ... in prep. for an RCT. Crawley et al. Recruiting Jan 2021

    Can anyone point me to where I can see where the funding for this is coming from ?-it's fairly urgent. Thanks
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