Search results

There is another issue here. Many of the clinics/ME providers are no longer "NHS" .......but CIC's Community Interest Companies, Federations of GPs (CICs)- ie essentially "privitised" medicine! They are often no better than "private" medicine. GPs are "private" under NHS contracts as are...

I agree! And the clip about the fate of children with chronic conditions like M E EDS etc has been sent to the Suffolk Safeguarding Children's Board who debate out concerns on Monday 5th October! Main Body of the Suffolk Safeguarding Children's Board Report: The concerns raised by the Suffolk...

Below is a link to a video of the Backbench Business Committee today. At 14:42 you can see Carol Monaghan et al asking for a debate about ME in House of Commons. She mentions the problem of the NICE GDG members being supporters of PACE...

https://www.bmj.com/content/331/7521/910 A History of the Royal College of Physicians of London, volume four (1948-1983) If ever there was a candidate for the dustbin of history at the outset of the NHS in 1948 it was the Royal College of Physicians of London. By then (the starting point for...

Moderator note: This thread has been split from: NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published https://www.bbc.co.uk/news/uk-44020235 The Royal College of Physicians, which oversees recruitment, apologised for the "human error" and is...

This was quite powerful I feel ....... http://www.pulsetoday.co.uk/views/letters/what-i-learned-about-chronic-fatigue-syndrome-from-my-research-project/20032262.article What I learned about chronic fatigue syndrome from my research project 15 July 2016 Letter from Emma Davies, a medical...

I disagree Barry as leopards oft don't change their spots...

Oh my word... "rampant ME Association!!!"" MEA might need to respond to this or Forward ME? that and the transcript of the 1999 Panorama with Matthew Hill. "Sick and Tired"....... http://news.bbc.co.uk/hi/english/static/audio_video/programmes/panorama/transcripts/transcript_08_11_99.txt "Wonder...

"The Merry Go Round I got sent to neurology and he sent me back to orthopaedics and orthopaedics were the ones that referred me to neurology in the first place because they said it wasn’t an orthopaedic problem. And then I went for a second opinion and she didn’t get my files so she couldn’t...

Glad to hear this......... but why so much procrastination and intrigue from RCP and NICE? Or should one not ask............? One a small victory regionally for Suffolk and Norfolk yesterday re service development, NICE or no NICE!

This is the article I meant to upload. https://www.theguardian.com/theguardian/1999/oct/30/weekend7.weekend1

So sorry. I lost a friend ( healthy) who was on a drug trial in 1980's when he was a scientist at Glaxos....( he was short of cash)... he became ill and committed suicide when he stopped the trial..... See https://www.theguardian.com/uk/2001/may/26/sarahboseley Prozac class drug blamed for...

Perhaps they were thinking more "Prejudicial Interest" rather than COI, i.e. come to meeting with an open mind not a preconceived view? This is required of elected members of a committee in local government and planning in my experience. https://en.wikipedia.org/wiki/Prejudicial_interest In...

Or are they a "PITA" couple? I will leave you all to guess the acronym!

Don't forget that the interviews are organised by the National Guideline Development Centre RCP........ not NICE,... so do they have some of their own rules...? so who did the interviewing (those that were interviewed should know?).

Merged thread https://edition.cnn.com/2018/10/16/health/acute-flaccid-myelitis-afm-cdc-update/index.html Yesterday, the CDC said it's seeing dozens of cases of a polio-like illness that can cause muscle weakness or paralysis. The CDC is saying 'to be clear, this isn't polio.' But it's also...

BPS cult are those doing the Governments bidding...... Part of the problem is the CCGs are signing up to the new emphasis and Government policy for chronic LTC, IAPT £££££ :and the CCGs are therefore encouraging a "wider type pf patient" in their supposedly "ME and CFS Service Clinics. Its a...

Tony Crouch is a really good egg who knows personally at the coalface......

Moderator note: This article is from 2008. Discussion sorting out the date has been deleted. https://www.meassociation.org.uk/2008/07/medical-research-council-mrc-and-mea-meet-to-discuss-biomedical-research-into-mecfs/ Medical Research Council (MRC) and MEA meet to discuss biomedical research...

Never mind, "Mind the Gap", methinks separation would pay off! SW, "We should not accept this separation. The Medical Research Council allocates funds via a single board for both neurosciences and mental health. The World Health Organisation, which runs something known as the International...