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Oh so would I except they cant deliver it to housebound as it is too unstable :-( So Hobson,s choice.

I,ve always kept plenty of reserves in case village cut off. I find priority delivery slots 8-2 and 2-10pm awkward as it can clash with me eating or carer here, and I need to put boxes on the floor for driver to put stuff in so carer could be tripping up. Much better to have a timed slot but...

Just he update - been phoned today not by gp but NHS that they will come and give me Astra Zeneca early Jan as cant bring the Pfizer one out - scary to be one of first as not yet approved tho expected to be soon. Was put on spot but decided to agree tho do feel like guinea pig. Will update you!

As I am 81, I had a letter saying I wd get the Pfizer vaccine though it talked of going to a centre which I cant do as cant use wheelchair. Not sure if nurse will come out if it is that one that needs to be -70. I would prefer to wait a bit too as I live alone with twice daily carers so scary...

I give leaflets -Lauras excellent comic strip illustrating PEM and ME awareness leaflet for public to save explaining to people. Download both from www.mechat.co.uk/db/tips.htm

I got it after an upper respiratory tract infection. Came home from work with sore throat then fever etc Always called it flu but dont know if that is different.

A portable sunlounger/sunbed, ie feet level like in bed, has helped me to visit friends when well enough even before I became severe and need to lie down all the time except trips to loo etc

McEvedy didnt consider that the prevalence of it among females was because the nurses were female, it spread in the nurses homes etc.

Also your body muscles are constantly adjusting to the motion of the car.

I have a pedometer but wanted it to be sensitive to count arm movements as they use up energy too. The one thing any step count doesnt register is what for me is the worst ie standing still!

I think an important part of pacing is understanding what uses up your energy ration apart from physical activity and your worst triggers, as some not obvious to uninitiated. Time upright standing still or sitting upright because of OI - I never realised till too late. Interaction - not just...

Just a reminder if you wear specs, look for mask with nose wire so it fits snugly and they dont steam up.

Wessely hasnt personally but his wife, gp Clare Gerada was its president. Very powerful couple :-(

Well it is a sort of caveat for pwme but pwme still at risk :-( At least something to quote.

I have been able to get fortnightly timed slots from tesco last few weeks as the priority ones could clash with me eating brek or supper after carer had been or while she was sorting my meal so a timed one is easier for me to manage. I got on priority list by phoning them Up. have to remember to...

Terrific video - well done! @Adam pwme So many more recently diagnosed have no idea of what so many of us have lived through it know well.

Are there links to any of the Dagbladet articles saying pwME are militant?

i always put lettuce and celery in water on windowsill to keep them longer like vase of flowers. Onky trouble lettuce shoots if you keep it too long.

NICE should at least issue an interim caveat on GET in the circs especially as coronavirus patients may well be encouraged to do it.

Very good @Hutan. Another point I would make about using pedometers is that they don't measure one of the worst things you can possibly do, as I have found, is standing still - my downfall. sorry hadnt read it all before.