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@NelliePledge Hi Nellie- I think yours is a good question. I am not fully clear on the implications of the various diagnoses. I can tell you that at my first appointment with a cardiologist, I asked him whether I had Pots. He did a stand test for 3 minutes before saying 'no'. It should have...

@ChrisH I understand from your last post that you believe your ME to be linked to radio frequencies around your tall apartment building. I am afraid I am not familiar with this subject at all, apart from knowing that some find sensitivities to mobile phones, microwaves etc. I don't know if we...

Thanks @ChrisH That's a useful summary. It seems unfortunate that having gone through surgery a second time, you cannot reap the full benefits because of the ME. I am not familiar with the drugs you mention but after 6 months on acyclovir, sense there might be some improvement but, as I said...

@ChrisH Thanks for your interesting post. Could I just check that I am interpreting correctly when I conclude that, once your aortic stenosis was corrected at around 70, you had 13 years without heart problems ( but with ME) until your recent surgery. In other words, once the heart problems...

@AndyPandy Unsure if you have tried antivirals, but in the link I posted above, Lerner does claim that antivirals improve both cardiac and CFS symptoms. He also claims that rest is essential. I try to keep my heart rate as low as I can helped by a wheelchair. OI stresses the heart when I am...

@AndyPandy As I understand it, ME brings with it higher risk of hypermobility and heart valve problems. Perhaps pwme should talk to their gp re this. An echo will show up valve problems. I also remember from the past one of the US ME doctors writing about the extreme amount of rest we need...

I understand that pwme are more likely to have hypermobility issues, and that these might be linked to heart valve prolapse- this may just apply to the mitral valve. I'm not sure about that. Dr Bansal diagnosed me with hypermobility in April this year, and I had a mitral valve prolapse...

It would. Any suggestions on identification? A Guardian ripped to shreds under left arm? Oh no, that should probably be in angry thread. Perhaps just.....?? What do you think? Actually I think I had a photo of me as an avatar for a while. You might recognise me.......and me you. Shall we decide...

Thank you @TiredSam for the alternatives Amazon video lined up but the numbers on iTunes will deplete if we spread our purchases. What to do, what to do?

@MeSci has just posted on another thread that You and Yours has just had a fairly large section on people with ME getting turned down for benefits. Perhaps the various approaches to ME, including Unrest, are together beginning to change the direction of perception of our illness in that we seem...

Sorry @Wonko that " Unrest" didn't do it for you. Haven't seen it yet so no personal comment. Would your sister not see a bit more of your life from it? Not saying she would- just a question. -But my tickets arrived this morning ( Crowborough on Sun 12th Nov) -I will buy a DVD, hopefully to...

Thanks for posting @MeSci. Not listened yet but we seem to be becoming fashionable/popular as an issue. So thrilled about Unrest at no1 iTunes.

I understand that "Unrest" will be released on DVD in December. Hope to see the live version in Crowborough (UK) before then. It's on a Sunday afternoon, which is a good time for me. The London showings that I saw were mid- late evening. EDIT: I see the Dec DVD has already been mentioned...