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  1. Binkie4

    Backbench Business Committee for next Parliament debate

    Thanks @It’s M.E. Linda
  2. Binkie4

    Backbench Business Committee for next Parliament debate

    Can anyone fill me in with the names of the 4 speakers to the Back Benchers Committee? As well as Carol and Nicky Morgan, please can someone tell me the names of the men who spoke. Also I didn’t understand the reference to three and a half parties being represented. I know where Carol and Nicky...
  3. Binkie4

    Surrey Live: Grandma with severe Chronic Fatigue Syndrome misses daughter's wedding and grandchildren's childhoods

    Just too pem’ed to post currently partly as a result of seeing grandchildren last week. Truly felt so, so sad at having to say ‘no’ to granddaughter asking me to play a board game with her.
  4. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Why has Nice revealed the names of the members of the GDG in different sized groups? How does CS know there are more to come? Curious.
  5. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Sorry @rvallee It is ‘edited to add.’ It would be more efficient to post a photo but that’s beyond me currently.
  6. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    https://www.facebook.com/meassociation/ I have found some comments by Dr Shepherd. I do find the order in which posts come up is erratic so I hope the relevant one isn’t omitted. It’s during the course of a long discussion started about ME care in Wales. Dr S talks about informed consent and...
  7. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Should not the ME charities be involved with this? We are going to be scuppered with this gdg. Why are they releasing them piecemeal? @Afme @MEA ETA: rewording of last sentence
  8. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Is there still room for any influence? How? Hope this is not too much pressure. ETA: I think there are 2 more posts to be allocated???
  9. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    @Gecko . Just wondering if there is another source we should know of? Or just keeping a useful eye open? Thanks.
  10. Binkie4

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I have been unable to find a full list of gdg members on the AfME website. @Andy, you say “ additional members being found out”. So there was no announcement? So, who let it slip and why?
  11. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    Clare Gerada and Sir Simon Wessely “Folie à Deux”
  12. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    @Trish I am sorry that you have had to be on the receiving end of Clare Gerada’s vileness. You have represented our case so well. Thank you.
  13. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    @Cinders66 I didn’t know Holgate signed a letter of support for Wessely in the Maddox prize award. Interesting to know these things. And the more support someone has given someone, say Wessely, then the less likely they are to move to the group opposing, because their judgement is shown to be...
  14. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    How could we deal better with the PR issue? The BPSers have the benefit of long time control of the narrative, they have people of influence ( or at least important sounding titles) that they can wheel out; they have a lot of doctors on side and doctors have a reputation of being “ a good...
  15. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    That tweet by Clare Gerada is priceless.
  16. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    Can someone who tweets reply to Clare Gerada’s tweet at 9.14 this morning. ETA: you got there first @Sasha .
  17. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    Kate Kelland who wrote the Reuters article has a history of bias, and links with the SMC were pointed out a year ago. https://usrtk.org/our-investigations/acc_loves_katekelland/ It’s quite a long article to read before the SMC emerges into the story. I always thought Reuters was a model of...
  18. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    Blakemore has been involved before in supporting Wessely in his claims against patients. From 2011 in the Times https://www.meassociation.org.uk/2011/08/disease-of-the-braib-not-the-mind-has-no-stigma-professor-colin-blakemore-in-the-times-2-august-2011/ Beneath the words about understanding...
  19. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    She was also Chair of the RCGP ( Royal College of General Practitioners) so they are “a power couple.”
  20. Binkie4

    Cochrane ME/CFS GET review temporarily withdrawn

    I too was mistaken and thought it was CBT/ GET, and @dave30th tweet referred to them both. I ‘ll need to read the Reuters thing again. It was awful. Who is Kate Kelland?
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