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  1. Woolie

    Article by Paul Worthley

    Sometimes you just need a "like x100" button!
  2. Woolie

    Article by Paul Worthley

    I like @strategist's new word! Omnibabble = reframing a folk psychological explanation in "biological" terms without actually significantly altering the causal claim. e.g. "Stress and worry can destabilise the HPA axis, leading to chronic illness" "People who are in chronic pain exhibit...
  3. Woolie

    UK CFS Patient Rediagnosed with Lyme

    Thanks for the replies @duncan, and for talking the time to explain. I totally get you there. So tired of those lazy self-satisfied "skeptics" who only question research on topics that are widely considered to be frigney. Its very easy to appear clever and superior when you pick easy targets...
  4. Woolie

    UK CFS Patient Rediagnosed with Lyme

    So @duncan, would there be symptoms of chronic Lyme that could differentiate it from ME? I'm mean symptoms, not serology. I said above that symptomatically, the two illnesses look much the same, but I could be wrong on that. I would be happy to be corrected. That's not really fair. I completely...
  5. Woolie

    Article by Paul Worthley

    Yes. Its a sort of reverse inference fallacy. There are a whole family of them, and its time we took them to task. "anxiety induces heightened sympathetic nervous system activity, therefore heightened sympathetic nervous activity is an indicator of anxiety" "Depression and low mood can cause...
  6. Woolie

    Michael Sharpe skewered by @JohntheJack on Twitter

    This actually happened to me! Got a new diagnosis (a rare periodic fever syndrome), for which there are (some) treatments. And I'm still here! To be fair, I'm not cured, not by any means. Still working through the treatment options. So far, no-one has told me to leave cos I don't count as...
  7. Woolie

    UK CFS Patient Rediagnosed with Lyme

    I get the antigenic variation, latent infection thing. Infection hides, undetected in the tissue for ages, etc. Like EBV. But what does that have to do with toxins in mould? I totally get that people diagnosed with Lyme can be severely ill, no questions in my mind there, what they have is...
  8. Woolie

    UK CFS Patient Rediagnosed with Lyme

    @duncan, thanks for responding. I'm still trying to get my head around what a bacterial infection has to do with mould sensitivity. What tent dwelling could possibly offer. That sounds more like an immune thing than an infectious disease.
  9. Woolie

    UK CFS Patient Rediagnosed with Lyme

    From the article: So Lyme Disease UK is comfortable describing the disease as something that renders you unable to 'detoxify' toxins released by mould. I'm a bit concerned by that. What this group says impacts on ME advocacy, as ME is often grouped together with Lyme. I still haven't got clear...
  10. Woolie

    New small molecules for the treatment of autoinflammatory diseases

    Thanks for posting @Indigophoton. I'm especially interested because I've been diagnosed with an autoinflammatory disease. But I suspect that I'm not the only one here who has one of these diseases.
  11. Woolie

    Michael Sharpe skewered by @JohntheJack on Twitter

    This. What's worse, this blurring is often facilitated by the doctor. When I first got ill, I was sent to an internal medicine registrar for testing. When I described my symptoms, I never mentioned tiredness or fatigue, because that's not how it felt to me at all. I described feeling really...
  12. Woolie

    Michael Sharpe skewered by @JohntheJack on Twitter

    Aye aye to that, @TiredSam I agree that Oxford CFS is defined in the wrong way. Anyone who wants our disease to be psychological tends to want to highlight the fatigue part. The emphasis on fatigue is misleading and does PwMEs harm. But this does not mean that those who meet Oxford criteria...
  13. Woolie

    Gay conversion therapy

    @James Morris-Lent, we forgot "Failure to recover from gayness is positively associated with membership of LGBTQ rights groups".
  14. Woolie

    David Tuller: Trial By Error: Professor Sharpe’s Pre-Hearing Briefing for Monaghan

    The acid test: When they want to say: "If I'd done my homework, I would have passed the test" Do they say: "If I would have done my homework, I would have passed the test" I've never known any native speaker of a Germanic language (other than English) to ever get this right. And that includes...
  15. Woolie

    PACE trial TSC and TMG minutes released

    No, I think what they did was correct for a power analysis. Which is to estimate likely effect sizes based on previous studies and ensure sufficient numbers of patients to detect effects of that magnitude. Power analyses are about preventing the possibility of a type II error (missing an effect...
  16. Woolie

    Gay conversion therapy

    :laugh::thumbup::thumbup:!! Spot on!!
  17. Woolie

    David Tuller: Trial By Error: Professor Sharpe’s Pre-Hearing Briefing for Monaghan

    The trouble is, you will probably get a significant simple correlation, because overall, the more severely affected people will tend to rate themselves more severely (on the physical function and Chalder fatigue measures) and will also tend to have have more trouble with the 6MWT. Could we get...
  18. Woolie

    Gay conversion therapy

    :rofl::rofl::rofl::rofl:!! .... if the activists continue their vexatious and threatening behaviour, young people will be reluctant to embark on a career in gay conversion therapy. .... some churches just turn gay people away. At least we treat gay people with sympathy, and we do our best to...
  19. Woolie

    David Tuller: Trial By Error: Professor Sharpe’s Pre-Hearing Briefing for Monaghan

    Yes, true. I think @Esther12 is just pointing out the need to choose our words with care.
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