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Looking at the numbers, do we think countries like India and Brazil are simply not testing for covid and wildly underestimating the numbers, or are escaping the pandemic for other reasons.

How many took ibprufen and it didn't affect the course of their illness? Tens of thousands? I have trouble believing a small dose of advil could do that. Seems like it was the most obvious thing amongst these 4 men but there may well have been a more nuanced factor or simply random clustering...

Here is my comment on that paper from another thread: Lucibee said: ↑ There was this paper from 2009... Mental morbidities and chronic fatigue in severe acute respiratory syndrome survivors: long-term follow-up. https://www.ncbi.nlm.nih.gov/pubmed/20008700/ Unfortunately they use the Reeves...

Unfortunately they use the Reeves definition This was interesting though I suspect there is a greater number of people with chronic fatigue in SARS patients, but wether it's me/cfs or not, I would wait for a better definition to be used before making that judgment. Btw - I don't think it...

That was an interesting slide in, can't find it now, that showed a woman tripled her active hours on tamiflu. That's intriguing, although probably an outlier.

Regarding HR, they say Regarding the results 1 of the authors is founder of the company that creates the "INMEST" device. The bottom graph is the length of the treatment (2months, 16 treatments). The top graph is the outcomes, which are recorded after treatment cessation. I believe the...

Cool, that makes sense. Still, I would think he'd have a decent shot since he has prelim data + NIH invited him to speak last year. Shocked to hear ME/CFS funding is 0 in Germany. That's so frustrating, is there a seperate thread for this? It's such a large, developed country. I've been lucky...

Are you sure they only fund 5 foreign grants? That sounds really low and I couldn't find that in the text of your link and the second paragraph doesn't seem connected. Actually they say I thought they were helping the U.K. biobank, and I'm sure if they are getting so few submissions for me/cfs...

His best course of action is to apply for an NIH grant - there is dearth of quality research proposals, and they have been willing to fund internationally. I know people complain about funding being low, but researchers need to actually apply for it to go up.

I'm just very unsure that the something in the blood is causing the me/cfs symptoms and not way down stream leading to some minor changes. I still think it'll be useful to figure out what it is, and maybe reverse engineer that to find out what's going on. I'm actually kind of surprised we...

Exactly, they have changed nothing because they recieve many me/cfs patients who are still trying to find out what's wrong, and offer to enroll them in cbt/get/stress relief services that they have a financial interest in, and are generally just comfortable with that system. Do they want to...

The NeuroCognitive Research Institute (NCRI) seems to be a research npo founded and run by the Zinn's who have authored several papers on brain-wave function in me/cfs. I don't think they are selling anything, maybe fundraising though. I admit it does read like an advert.

@Jonathan Edwards Thank you for this, it is splendid, concise and touches on all relevant topics.

I have trouble buying intracranial hypertension plays a major role in me/cfs for a couple reasons. There is not the progressive visual loss and eventual blindness in me/cfs. Nor do we see that the most severely ill more likely to develop visual loss and blindness. Even if intracranial...

Your probably right since both have the identical numbers of subjects (32me/cfs, 40ms, 19 hc).

Link I thought I'd post this preliminary finding here so it gets some exposure. Credit to @wigglethemouse for digging in and finding this study. I believe it's part of Columbia's ME/CFS CFE and hopefully will be published soon.

Famously taken by Maria Sharapova for a decade, according to her. Ended in a 1-year ban.

whoops, my bad

Spoiler: the study measures subjective outcomes in response to observable behaviors that would bias their expectations. Who is writing for NPR? These days they are as lazy as the rest. Nature Human Behavior: Socially transmitted placebo effects https://www.nature.com/articles/s41562-019-0749-5

To my knowledge, this is the first study on metabolites in the csf. I believe it's yet unpublished work. It's not clear how differentiated mannose was from controls, but it would be great to finally have something really out of whack. I have no idea what low mannose could mean.