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Buried in paragraph 3 of methods. Not in the conflicts of interest by name as it should be. This was supplemented by observations made by the lead author shadowing a three-day course (June 2018)1 and discussions with LP practitioners – two of whom are co-authors (PP, FF).

They are considering calling it a PPPS service?? What! Does this mean yet again funding is under a mental health budget/CCG, eg a health psychology service? Without doctors? I woukd hate for others to go through that.

What's the issue with the journal @davetuller - who is involved? I think it important that this does not go unchallenged - including the fact that they studied adults and children yet are drawing a conclusion for adults, the Ethics breech of a study in children for a therapy not proven save in...

Acceptance and Commitment Therapy is a firm of CBT but a new wave of it.

yes two of them are LP practioners as disclosed at the bottom

Thank you. Why Liverpool REC though?

Can someone point me at the Ethics Review board decision, and any Trial Management meetings. I have searched HRA, Scotland Ethics review boards (Edinburgh Lothian I think), and the forum and I'm none the wise. I also searched for Chris Ponting recent ethics approvals and couldn't find anything...

Simon Wessely designed the PACE trial, I believe there is evidence that his name was not used for ethics approval and White was used instead because with Wessely at the helm the protests would have been extremely loud. Despite being omitted from the list of authors, the original PACE study...

A standard pro-forma for patients to send, and FOI requests might be the way forward. Doctors 4 ME or Physios for ME may be able to help with this. I am hoping that a care plan template will be designed by Doctors 4 ME so that it keeps things compliant with guidelines without showing them to...

Looks like there are a considerable number of doctor-less services, some appear to be Dr led but the "Dr" is s psychologist with a PhD - psychiatrists are medical doctors, clinical psychologists are never medically qualified. Example - Harrogate and Skipton NHS...

They don't diagnose - only doctors diagnose - but this is not an isolated case either. Nuneaton, Warwickshire is OT led and rehab only Newcastle's Chronic Fatigue Syndrome/ME therapy psychology service is under the health psychology department but claims to have doctors for infectious...

Merged thread Graded Activity Therapy (GAT) as a renamed Graded Exercise Therapy A thread to record where Graded Exercise Therapy is being carried out, researched or promoted by calling it Graded Activity Therapy instead. There might be places where GET has been renamed Activity Management...

He doesn't run a centre. There are NO doctors at any ME/CFS centres anywhere in Cumbria, that's been the case for at least 8 years, since the North Cumbria and Northumberland Trust merger was called out... a once a month BPS doctor from Newcastle area did diagnosis only. (And botched mine by...

Dr Alastair Miller, things to know for anyone being interviewed or engaging with media BBC, Guardian (links previously posted on this thread) and others describe him as: an NHS consultant physician in acute medicine and infectious disease in North Cumbria, said exercise programmes could be...

They have been great at highlighting the lack of provision for ME in the past, you can find their previous Neuro Patience survey results online. I would really recommend filling it out - there is opportunity to pick Not applicable and to highlight what we are not offered.

I believe Invest in ME Research has never funded animal research either. Nor the Open Medicine Foundation, though they have used animal products in their research and might not have a policy against it. OMF have created a cell based model to mimic post-exertional malaise using human blood from...

We need to get them withdrawn from libraries, especially the Well Read section of recommended health related books... which was my first encounter with the BPS model and Sharpe's utter nonsense. I do not know how to do this.

Just posting on here since I am totally unable to find this study, which is referred to as if it's published: At the Institute for Neuro-Immune Medicine (INIM) Clinic, our clinicians discovered that some of their patients diagnosed with ME/CFS also had a mycotoxin exposure. Mycotoxins are toxic...

What's the conflict of interest statement What's the conflict of interest statement say on this? I notice second author affiliation is non-academic and profit motivated... J. Etherington b b Pure Sports Medicine, 12 Finsbury Square, London, UK I see John Etherington is already advertising...

Transforming healthcare through Arts. Arts. Not science, not medicine. Throwing away more money