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Anyone got a link to the study or press release? I checked the obvious places and found nothing. Not even on Imperial College's website. Danny Altmann hasn't tweeted it either.

CFS without PEM??? CFS does not exist without it's hallmark, compulsory symptom! How did this hey published!!!!

Didn't White "retire" from CFS research?

Self-ratings of Clinical Global Impression (CGI) change scores of 6 or 7 (“much worse” or “very much worse”), So, getting worse does not count as worse in fact? This sounds like bimodal scoring a la PACE trial again. Null results - are they really what is worth funding? What would be the...

So much for Wessely's "retirement". Were the vast financial conflicts of interest disclosed? I would be interested to hear of they cited any studies showing CBT didn't help. The FINE trial for instance.

I thought a thread for any special offers would be useful. Currently Nebula have free worldwide delivery, and WGS x30 for $299 (normal price $1000), which is a bit over £200 since the exchange rate is good at the moment. There is a x100 offer on too, plus an upgrade from x30 to x100 for...

too unwell to read - hope they cover the fake death threats used to withhold key information from advocates and to prejudice researchers against patients https://me-pedia.org/wiki/Intimidation_and_bullying_of_PACE_trial_critics

More lies exposed - with this story bring recycled dozens of times https://me-pedia.org/wiki/Intimidation_and_bullying_of_PACE_trial_critics

Thanks, a bit of a fail on my part - I needed to see the pages for each variant eg rs12248560 page separately to see which are nonfunctional or problematic.

Apparently most of the population have variants or absence of the CYP2C19 gene. But how do I figure out from the raw genetic data (rs17878459 etc numbers, and alleles) which variants I do or don't have? I'm working from SNPedia but usually it's just a case of checking the rs number, and...

I went through this face to face at a clinic. I was actually too ill to answer so many questions. The extremely hostile occupational therapist appointment was a requirement for me to receive any treatment at all. I just refused on the questions and said it is not relevant to the treatment...

That question is part of the 3Ps model. They don't use it to look at patient resistance but might use it to delve into irrelevant areas and excessively focus on psychological / social factors, or to focus on your (assumed to be incorrect) belief that a virus caused your illness. Basically...

The ME Trust in the UK do this service, and William Weir sees people in the UK - I haven't had contact with either.

Merged thread. Time for Trudie Chalder, psychologist of the Institute of Psychiatry to target Irritable Bowel Syndrome patients this time with CBT - no surprise - because according to Chalder they should be forced to question their own reality, and to test out what they already know is harmful...

AfNE is still not a patient led organisation and has been structured so that it won't be possible for patients to set the priorities or really be in control. It is not a disabled persons organisation (DPO) but a charity that does as it decides to do based largely on views of non-patients. A...

As in chair of the HRA during the time it investigated Crawley's ethics breaches? This Terrence Stephenson... https://www.virology.ws/2019/09/04/trial-by-error-more-on-cochranes-new-risk-of-bias-tool/ whose head of risk dismissed Crawley's eleven ethics breaches involving children...

I feel charities need to take a stand on this. Is this a list of main long covid charities and pressure groups somewhere?

CLoCk Study COV-LT-0022: Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study) Conflicts: Professor Sue Ziebland, Professor Tim Peters, Professor Marcus Munafo, Professor Applications considered COV-LT-0003: Hyperpolarised XEnon Imaging in Long-COVID Patients (HELP)...

Horrified that Crawley is co-author with Terence Stephenson on the CLoCk Study for kids with long COVID, meanwhile DECODE and many other biomedical studies get rejected...

Ethics approval - or non-approval? The ethics statement reads: "Ethical approval. Audit approval was provided by the Psychological Medicine Clinical Academic Group (ID number PPF191115) at the South London and Maudsley Hospital. All patients provided informed written." Why did this not go to...