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Autopsies have proved the brain and spinal cord damaged caused by ME, plus some brain scans too. Hyde never claimed to have proved the enterovirus theory.

Many new clinicians are joining the field, and that's being helped by patients providing funding and some charities now offering funding for PhDs also. This never used to be the case. Many of the older clinicians started to specialise after one of the outbreaks hit their area - but there's far...

Yes, that's exactly what a small group of patients do - we have the "true ME" because we were diagnosed by X

He knew what he was required to do and could have got an assist to do much of the organizing. Notes are often made during appointments, and not documenting test results etc - clearly out of order. Hyde could have fought this but instead he admitted it all - I presume he would have been able to...

Retirement is hardly suspicious! KDM was also overcharging and illegally importing medication Montoya sexually assaulted his employees and called it "cultural differences", and also repeatedly failed to publish anything much while receiving millions of funding. While Hyde has done a great...

Quotes Media bias A great tragedy in the UK re ME/CFS is the ongoing ignoring of patients and their concerns from institutions & professionals who claim to support patients - this paradox must be challenged. One cant claim patients are hostile militants, this is harm generating...

Unable to edit on my device Assuming this is still going please add 25% of patients severely or very severely affected Citation: IOM report https://www.nap.edu/read/19012/chapter/4?term=25+percent#32 25% of patients housebound, bedbound or reliant on wheelchairs Citation: IOM report...

Wait, CBT-F? Is this a new name? Are they now attempting to separate CBT for CFS from CFS, and what does that mean for patients?

FYI: It also violates research ethics and I can't see how it could have been approved with no info on ethics approved or background It violates the online survey terms and conditions : 2.2 states only for personal or consumer use, so not for use by government agencies or health services...

Complete it again with no and it should recognize your response as a duplicate and bin both

That's helpful thanks @Dolphin 6.1 A similar application of a much smaller two arm trial (FATIMA; Grant number G9825745) was submitted in full to the MRC in 1999, rated Alpha B, but not funded. The outline proposal of this study (G010039) was approved for a full proposal in October 2001. The...

Many thanks @JohnTheJack, and others who helped with this.

Exaggerated expectation of recovery? More nonsense suggesting incorrect beliefs or perceptions. Perhaps Mark Vink fabricated his past marathon times? Perhaps I fabricated my memory of being able to sit upright for a full day without pain? Do I think it's possible to not recognize when I'm...

Before the approval of the PACE trial there were several similar failed submissions to the MRC - only when they added "Specialist" Medical Care and I think the involvement of Action for ME was the trial approved. Can someone point me to the rejected / failed trial applications? I *think* I...

Mithriel points out physical symptoms of ME are often those that also occur in depression But HADS focuses on non-physical symptoms so that it can be used to diagnose depression in people with significant physical ill-health. Any overlap, for instance impaired concentration secondary to pain...

How long have you been sick with ME? It looks to me like 20% have been sick for 3 years or less, and about 20% have been sick 4-6 years, after that numbers get smaller.

Figure 6 - severely affected Apologies for the text that didn't for and the quality. Translated by Google. From p24 http://www.me-foreningen.info/wp-content/uploads/2019/06/De-alvorligste-ME-syke-rapport-og-vedlegg.pdf Confusingly there was a link to another, shorter report with different...

would love to see this explanation in a meme BPS = doing the same thing repeatedly (since the 1990s!) and expecting different results - insanity - it didn't work then, it doesn't work now - even null trial results by BPS-ers like the FINE Trial don't discourage them

lookup hypokalemic periodic paralysis, as mentioned by Greg Crowhurst on Stonebird

Ironically, the FND comparison of a computer with software that does not work actually DOES fit a number of physical conditions, including hypokalemic periodic paralysis and normakalemic periodic paralysis - with HypoPP being found in some with ME, as described in Stonebird (acquired form), and...