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Or like leaving a rotting corpse on a slab in public.

My only question is whether people lay down or not during each hourly period - I won't be asking about symptoms. My concern is that meds will change the natural timing of the symptoms during the day, which is what I'm after. It's a blunt instrument, but we're either lying flat or we're not...

Just wondering if I should do separate polls for those who are vs aren't using any OI treatments.

Some good words there, though. 'The ME/CFS Science Examiner'?

The ME/CFS Research Inspectors The ME/CFS Research Detectives

'The ME/CFS Science Boffins'? 'Boffins' might give non-native English-speakers a bit of a challenge, though. Not sure I like this one but chucking it out there in case it inspires anybody to come up with something better...

How would you ask about the pattern in a way that would give us useful info? I'm still inclined to go hourly and hope we get enough respondents for any signal to emerge.

That's a good point, @Yann04, thanks! I'm intending to have an explanatory first post and will mention this.

'ME/CFS Science Microscope'? (Trying to think of something memorable and distinctive that also describes what you're doing, though as @Simon M says, I'd prefer something that also captures that you are experts.)

Just want to say I'm not a fan of 'sleuth' because it carries connotations of amateurism. In fiction, a sleuth is an amateur detective, while the police are the professionals. (Of course, in fiction, the amateurs are better than the professionals, but I think you're better off not associating...

Thanks, @Murph, well-found! I'm pretty sure that was it. I don't know how his theory is thought of, at this point.

I'd like to set up such a poll, just to see if there's a pattern, but I'd like help to settle on the question. Better to ask, 'When did you lie down today?' or 'When did your OI make you lie down today?' I'm not sure whether we can tell OI from fatigue. And then I thought that the response...

Any thoughts about how to get it tidied out? This is such a disabling, life-sucking symptom for so many of us.

I know zero about biology but I recognise this term and have the impression that someone was making a really big deal about it a few years ago. Ron Davis or someone in his wider group, maybe?

Maybe it partly depends on whether your tagline ('A critical view into ME/CFS research') is always shown with your title. If it was, I'd be less worried but 'view into' doesn't sound right - might be better as 'A critical view of ME/CFS research', or 'A critical analysis of ME/CFS research' or...

I'm thinking the name needs 'research' in the title to make it clear that you're not sceptical about ME/CFS itself. How about 'ME/CFS Research Skeptic'?

I hadn't been aware that you had a blog but now that I've seen it, I've voted to change the name because it would have put me off - I wouldn't have thought too hard about it and would have assumed that you had a sort of blanket cynicism about everything or didn't believe ME/CFS was real. I wish...

Which suggests to me that it had an effect, otherwise they wouldn't be trying to stop us doing it. It doesn't matter if we don't get a direct response from the people we write to; what matters is that people in the organisation are told what is going on, from patients' point of view, and have...

Maybe not many people in Cochrane are watching it play out. If there are key players we would like to know about it, we could write directly to them: not as a complaint, not as an attempt to open up a correspondence, simply to say, 'This is going on in your organisation. Don't you think you...

Interesting to read people's success with these interventions for their OI but FWIW, I've tried oral fluid/salt/electrolytes/rehydration solution, IV saline and waist-high compression tights, all with zero effect. :(