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I read that as saying that funding is not secured! I think that Chris is saying that if funding is secured, that is the time for anyone to come forward who wants to help.

Smallpox, though!

Wow, just realised that this paper is nearly nine years old! @Jonathan Edwards, looking back, what sort of impact do you think it had on colleagues? Do you think there have been any substantive advances in our knowledge since then, or avenues of inquiry that can now be ruled out, or new ones...

I used to use those but then read somewhere that it could muck up your nasal microbiome so I stopped, but I don't know how true that is. I once forgot to add the salt and it was agony!

I also wonder whether the risk of Long Covid remains the same with each new infection or declines. Particularly if it remains the same, the risk to public health will be huge and never-ending.

I've spent the last five years shielding, and despite that, have had major setbacks from what have probably been Covid infections. I'm wondering whether I and the many other PwME still shielding will ever be able to safely return to society. Five years on, what do scientists now think about the...

Apart from rhinitis (if you had it), did you feel less generally unwell after you'd got your filter?

Just had a look at robot hoovers and am excited to see that they now mop floors and empty their own dust containers and clean their own mops! Having to constantly empty the tiny dust container of my old Roomba was exhausting for me, and I'm incapable of cleaning my kitchen and bathroom lino...

I used to have a robot vacuum cleaner and then got an actual person to use a big hoover and by the time the pandemic came around and I started to shield (which I'm still doing), I'd forgotten about the robot, which I'd sold by then. Maybe I should get one again...

I have a permanent stuffy nose that also runs now and again for no apparent reason, and have had for years. I live in a dusty flat that I can't hoover, and I'm wondering if that's contributing. Has anyone here with rhinitis been helped by an air purifier?

But as I mentioned earlier, NICE's hierarchy of evidence doesn't rule out non-RCT evidence, and includes: And the fact that PwME have been dying should (in any sane world) mean that a sane set of guidelines should be introduced, now that attention will be focused on it, even in the absence of...

Thanks for the summaries of what has happened! Can anyone do a one- or two-sentence summary of what should happen next and who, if anybody, is taking action?

@Jonathan Edwards, what about engaging with Dr Helmsley and improving on the new guidelines that were produced for his hospital to avoid a repetition of what happened to Maeve? He would surely be highly motivated to contribute to top-quality guidelines for his own hospital and to be part of...

NICE's hierarchy of evidence doesn't rule out non-RCT evidence. For instance: Plenty of scope there! And there's presumably no evidence for starving patients to death, so it's maybe a low bar... Interesting (British Society of Gastroenterologists).

But if there was guidance from NICE, doesn't that at least put patients and the carers trying to advocate for them in hospital in a far stronger position? I know that NICE offers guidance rather than lays down the law but my understanding was that it nevertheless carries considerable authority...

I'm so sorry, @Maat, that is all just beyond awful.

I just can't get my head around how there's this black hole where patients are being left to die. If the NHS isn't about saving patients' lives, what is the point of it? I don't see any conflict with neutrality in pointing out this lethal gap in provision and trying to get it addressed, but...

I don't understand enough about how the system works to suggest anything, but I can't understand how the system can be so dysfunctional that patients are being left to die because no one has thought things through and nobody in authority cares enough about PwME to do anything about it. Can't...

This is a lethal level of craziness. I've lost track of where the campaigning is on this, but it can't succeed fast enough. And if there isn't any, we need to get some started.

Why would a PwME need to be sectioned to get feeding help? Couldn't they just say, 'I don't agree that my condition is psychiatric but put me on the psych ward and give me feeding support anyway?' Given that it's a matter of survival?