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  1. Sasha

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    Speaking of which, how are you doing with your Covid infection? I hope you're feeling better.
  2. Sasha

    NEW POLL! Are these good ‘ME’ images for the media? (See explanatory post)

    Thanks, @Simon M - just wanted to add that any further discussion of the images and the pool should be on this other thread.
  3. Sasha

    Lancet photo competition for “original photographs that bring a fresh focus to a health story” -potential opportunity for awareness?

    Poll closed, 90% in favour of the Getty Images collection put together by PwME Thank you to everyone who voted in the poll! It's now closed. Please go to this other thread to see plans for getting the collection out where it can help.
  4. Sasha

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    Poll closed, 90% in favour of the Getty Images collection put together by PwME Thank you to everyone who voted in the poll! It's now closed. Please go to this other thread to see plans for getting the collection out where it can help.
  5. Sasha

    Improving images used to depict ME/CFS

    Thanks, @Simon M - just wanted to add that any further discussion of the images and the pool should be on this other thread.
  6. Sasha

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    Thanks very much to everyone who has voted on the poll so far! We’ll be closing it on January 3rd. And just a reminder – if discussing individual photos, please don’t post any copies or screenshots of pictures from Getty Images – it’s against their copyright terms and they’re known to use...
  7. Sasha

    Improving images used to depict ME/CFS

    Thanks very much to everyone who has voted on the poll so far! We’ll be closing it on January 3rd. And just a reminder – if discussing individual photos, please don’t post any copies or screenshots of pictures from Getty Images – it’s against their copyright terms and they’re known to use...
  8. Sasha

    Lancet photo competition for “original photographs that bring a fresh focus to a health story” -potential opportunity for awareness?

    Thanks very much to everyone who has voted on the poll so far! We’ll be closing it on January 3rd. And just a reminder – if discussing individual photos, please don’t post any copies or screenshots of pictures from Getty Images – it’s against their copyright terms and they’re known to use...
  9. Sasha

    NEW POLL! Are these good ‘ME’ images for the media? (See explanatory post)

    Thanks very much to everyone who has voted on the poll so far! We’ll be closing it on January 3rd. And just a reminder – if discussing individual photos, please don’t post any copies or screenshots of pictures from Getty Images – it’s against their copyright terms and they’re known to use...
  10. Sasha

    Lancet photo competition for “original photographs that bring a fresh focus to a health story” -potential opportunity for awareness?

    Hi all! If you posted, ‘liked’ or read comments on this thread, I hope you might be interested in spending just a few minutes helping out with an important, related project here on the forum – namely, to get the media to use better images of PwME in their news articles. A large group of us have...
  11. Sasha

    Improving images used to depict ME/CFS

    Hi all! If you posted, ‘liked’ or read comments on this thread, I hope you might be interested in spending just a few minutes helping out with an important, related project here on the forum – namely, to get the media to use better images of PwME in their news articles. A large group of us have...
  12. Sasha

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    Hi all! If you posted, ‘liked’ or read comments on this thread, I hope you might be interested in spending just a few minutes helping out with an important, related project here on the forum – namely, to get the media to use better images of PwME in their news articles. A large group of us have...
  13. Sasha

    NEW POLL! Are these good ‘ME’ images for the media? (See explanatory post)

    Thanks, @Samuel. It's true that there can be different uses of photos but our aim was simply to create a pool from which photo editors could draw and that would represent a more realistic picture of ME/CFS than the current ones they use that trivialise it - such as the yawning office worker at...
  14. Sasha

    DecodeME - UK ME/CFS DNA study underway

    Just bumping this, which is on at 4pm this afternoon.
  15. Sasha

    Improving images used to depict ME/CFS

    The right photos may already be in those repositories. I found quite a few for the Phoenix Rising project. We just don't understand the problem from the photo editors' point of view, and I think we need to do that before we do anything else. It's no good getting photos onto those stock...
  16. Sasha

    Improving images used to depict ME/CFS

    Yes! Looking back, I think we missed out on this first step of finding out how photo editors actually behave. :)
  17. Sasha

    Improving images used to depict ME/CFS

    But that would only be useful if we knew what tags photo editors would use to search.
  18. Sasha

    Improving images used to depict ME/CFS

    I don't think we know how we should tag our photos, because we don't know what photo editors are searching on. When you look at how they illustrate any health story, it's not disease-specific; it's generally just somebody in a hospital bed, or attached to a drip, or in a wheelchair, or whatever...
  19. Sasha

    Improving images used to depict ME/CFS

    These questions are why we need to find a photo editor! We can only speculate - they will actually know...
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