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  1. Shinygleamy

    6-month neurological and psychiatric outcomes in 236 379 survivors of COVID-19: a retrospective cohort study..., 2021, Taquet et al

    On instagram Quote from wessely. Getting his oar in. Ps I'm an independent expert too. My speciality is 'getting irritated by self declared experts.'
  2. Shinygleamy

    Blog: "The Death Threat Myth Exposed", Jennie Spotila

    I think that journalists letter mock up, as far as I recollect, hadn't even been to Crawley. It might have been supposedly a message to Wessely.
  3. Shinygleamy

    Blog: "The Death Threat Myth Exposed", Jennie Spotila

    As far as I'm aware there was never a police case filed in relation to wessely. If he put in a complaint shouldn't there be a case number? Someone might correct me if I'm wrong.
  4. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I noticed that Matt Handcock responded to this yesterday, maybe the first government minister to comment on Long covid?
  5. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    World at One bbc radio 4 had a section on Long Covid today. Covering Doctors with the condition, the Nice Guidelines and a suggestion at the end by a GP Gail Allsop leads on Long covid for the Royal College, that your problems are over once you get yourself referred to a long covid clinic. At...
  6. Shinygleamy

    Who is Simon Wessely?

    Going to be missing that shitting one. Hearing his voice make me nauseous.
  7. Shinygleamy

    Multiple Sclerosis and ME/CFS - similarities, differences, misdiagnoses

    Something that's been worrying my family in regards to my brother's MS diagnosis is that the medical staff knew nothing about M.E. Is it possible to misdiagnose someone with ME with MS? Are the brain lesions and the spinal fluid proteins completely differant to those found in ME?
  8. Shinygleamy

    Multiple Sclerosis and ME/CFS - similarities, differences, misdiagnoses

    Certainly if there was a test for M.E. it would make things a lot easier. In my family's experience, every time we've developed other health problems our gp and consultants try to remove the M.E. diagnosis. Even though the new condition doesn't explain the M.E. symptoms and there's no doubt of...
  9. Shinygleamy

    Multiple Sclerosis and ME/CFS - similarities, differences, misdiagnoses

    My brother has both, he has had M.E. from childhood complete with PEM which you don't get from MS. Then as an adult developed numbness/pain in his legs and from mri and spinal fluid was diagnosed with M.S. I imagine it's just the luck of the draw, having M.E doesn't prevent you developing other...
  10. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Your sarcasm has reached new heights, look what he's done to you!!! Maybe we can run a trial of before and after:laugh::bored::nailbiting:
  11. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Quote from Garner: There’s an ME dogma that anything to do with the mind-body connection should be rejected, anything to do with exercise therapy should be rejected. I would also point out that M.E. folks do not reject exercise, I'm sure that almost all of us try to keep exercising and many of...
  12. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    That's why these clinics are genuinely excellent. That woman was sorted so quickly. And she never came back, so she's obviously delighted with the results!
  13. Shinygleamy

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I really wish you guys were put in change of reforming science and medical practice. You'd have it whipped into shape in no time. I don't think you would find it difficult. If you have the right intentions everything is obvious. Flim flam, complication and impossibility is created by those with...
  14. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think this debate is on the whole irrelevant, yes if m.e. folks swear it'll be used as an example against us but in reality we have no power whatsoever. Whether we behave badly or well doesn't actually make any difference because we are a persecuted group. If you look at descrimination against...
  15. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    My mum and brother, both with M.E. think the same. I currently think he's not clever enough for that, thought it's possible someone may be playing him like a piece on a chessboard.
  16. Shinygleamy

    What symptoms of ME that you personally experience is (a) not shown on your medical file and/or (b) not in the ME literature.

    Loss of facial recognition. I dreaded meeting anyone a knew as I wouldn't have a clue who they were.
  17. Shinygleamy

    What symptoms of ME that you personally experience is (a) not shown on your medical file and/or (b) not in the ME literature.

    Hypopnea, shallow breathing, and loss of unconscious breathing. Really horrible sensation when you don't know how to breath.
  18. Shinygleamy

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    Stephenson was most notable for guiding the RCPCH in agreeing 10 published national standards, Facing the Future: Standards for Paediatric Services. This was the first time the College committed publicly to a defined set of standards for all children receiving inpatient care or assessment across...
  19. Shinygleamy

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    Mmm I'm guessing the ck stands for covid kids what about the clo?
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