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  1. Shinygleamy

    BPS attempts at psychologizing Long Covid

    That's what I feel. If you're putting life trauma in with extreme life or death events you're undermining the original ptsd diagnosis.
  2. Shinygleamy

    BPS attempts at psychologizing Long Covid

    Ptsd has undergone a horrible transformation of recent years. It used to be a specific disorder caused by extreme out of the norm life ending events, soldiers at war, men from the piper alpha disaster. Then suddenly I noticed this year that every man and his dog has been given this diagnosis...
  3. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    If Exeter had been doing more than the bps model they wouldn't be able to advertise it or they'd get shut down. Just like Julia Newton in Newcastle did.
  4. Shinygleamy

    UK - NHS England online tool and clinics for long Covid.

    I suspect it's going to be really lackluster because they won't be investigating covid people medically/scientifically and trying out treatments as they should. It will all be self management, rest, feelings, etc but nothing solid, because how can it be in the current wafty NHS system?
  5. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Absolutely correct about empathy. It's not i feel for you because my life is just like your life.
  6. Shinygleamy

    UK - NICE guideline on Long Covid

    This is going to be important. Are they going to hire some awful individuals to write the guidelines? Are they going to write that covid is definitly not ME when they have no evidence for that statement. Are they going to recommend the mus clinics for those with no physical damage to their...
  7. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I personally would like to see research projects with me folks and covid folks (who have no explanation for their symptoms and look ME-ish) but with the groups results kept separate, initially, to see what the differences and similarities are. I think it would very quickly tell us the situation...
  8. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    There is definitly one reason covid long haulers shouldn't shun m.e. folks. If they want to get a head start on research and understanding of the condition you would look to M.E. data/knowledge. That alone is something we have that many will not turn their backs on.
  9. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    To me the stairs issue is very M.E. I noticed on the previous comparison between M.E. and Long Covid symptoms that breathlessness was listed for covid but not for m.e. Well I can tell you I was getting out of puff climbing my mum's stairs yesterday! Breathlessness has always been part of my M.E...
  10. Shinygleamy

    Public The Lancet changes editorial policy after hydroxychloroqiune Covid study retraction, 2020

    Mmm, could be very interesting seeing the consequences of this. It's bleeding awful really. Say that the drug had actually been saving people from death then was halted due to that study. The authors would have the blood of thousands, tens of thousands on their hands. Surely that's totally...
  11. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Next week 29th sept on BBC radio 4 Adam Rutherford is doing a program on long covid. As he has it. This program might be rather good, https://www.bbc.co.uk/programmes/m000mzms
  12. Shinygleamy

    UK writer with ME Susanna Clarke - press articles

    My whole family i have severe cognitive problems, having to make a decision is one of the worst things I can do to make my health deteriate. At gives me terrible brain brain. I've always felt one of the big causes of cognitive issues is lack of blood flow to the brain. I used to watch a lot of...
  13. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I think it might also have come from the 1920's with the heathly body is a healthy mind ethos. Where girls and boys where encouraged to take part in formation exercise. Before then only the upper classes did leisure exercise everyone else did hard labour/work.
  14. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    You put things so well;):laugh::thumbup:
  15. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Ever since Norway took a step forward in recognising and researching M.E. it's become a serious war zone, as the bps lot try to shove the progress back in the box. It's a messy business.
  16. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yes all I did for the first 10 years was get up and sit at the table for meals and go to the loo, the rest of the time i was lying down. Didn't end up with shrivelled limbs:whistle:
  17. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    They are going to try and keep M.E. and covid people separate just in case they have to make consessions to Covid folks (such as dispensing with exercise therapies). This is why we need to make sure covid and M.E. folks keep together. Some covid folks are now being diagnosed with M.E. it's in...
  18. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    At the moment there are worrying increases in positive covid cases amongst the young. The government really need to advertise long covid, as there is very little risk of death in this age group and therefor they don't feel covid is a problem for them. I think if the government were to advertise...
  19. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I think his M.E. patients never went back to him when they found they were much worse after a year. Something he refused to acknowledge and they gave up trying to tell him.
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