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c2001 article about Ross River Virus, mentions Brett Lidbury (https://freshscience.org.au/2001/ross-river-virus-tricks-immune-system) Ross River virus tricks immune system With Ross River virus infecting an increasing number of Australians each year (5000-7000 cases), researchers have...

** UPDATE ** previous winters, i had to sleep sitting upright on pillows, to avoid choking on the lung fluids. i tried multiple asthma drugs that were 100% useless. last year, a friend recommended a specific herbal 'cough lung tonic', which kept me safe through the (southern hemisphere)...

i love my LDN. after GET & years of extreme photosensitivity - then very slow increments of LDN dosage, i was able to go outside in bright sunshine, without pain. blue sky, trees, birds flying, all the lovely things. it was a very happy day. i started on 0.15mg, slowly worked up to...

don't judge, but when i'm well enough, i play "pokemon go" on my mobile phone. if the pokemon runs away from me, there is a millisecond where i recognise this is about to happen, and #simultaneously# my body triggers a simple seizure (muscle spasms). similar with cutlery - i'm startled...

i'm impatiently waiting for "the moment" when the medical world consider the obvious, and realise they've been abusing patients (not just us), and MUST reduce their own bias. and i'm crying for all the lost lives, and abuse, we have all endured.

d-ribose was useful when i was recovering from GET damage. it also reduced pain in my hands toes etc. i was careful to stay within my energy limits. i use tryptophan (not tryptophane) to reduce effects & duration of PEM, including pain weepiness brain-fail. small doses, short duration.

thank you - a magnificent achievement, using a huge amount of knowledge & dogged persistence. i'm crying, because this will allow thousands/millions of people to be saved from unnecessary harm.

regarding the experience that putting food in our mouths, can help us feel better, even though the food hasn't reached the stomach. AFAIK when we put food in our mouths, cells in the lining of our mouth check to see if the food molecules are safe. ie the food hasn't reached our intestines, but...

it's a wonderful initiative. however, price agreements between government and pharmaceutical companies, can become grossly inflated over time, despite the original aim of keeping costs affordable. an example is melatonin tablets to improve sleep - subsidised prescription costs patients $36...

Workwell Foundation (USA) are exercise physiologists, who have excellent knowledge of ME. they may be able to help you locate a knowledgeable physiotherapist. https://workwellfoundation.org/

red/blue colouring of the lower legs, could be blood pooling, instead of being pumped back to the heart. if the small red spots are persistent, they might be petechia another possibility is Idiopathic Thrombocytopenic Purpura

there's also https://www.ecdc.europa.eu/en/disease-vectors/surveillance-and-disease-data/tick-maps

on par with monty python / burn the witch. ridiculous logic, infinite recursive errors

i've had something similar for last 2-3 winters. my suspicions include: - our bodies are colder and less able to function at a cellular level - higher risk of winter-time community-acquired minor infections, that make us weaker - colder, wetter air - because lowered body temp, the air we...

FWIW, i've recently been prescribed pentosan polysulphate sodium (PPS). is there a possibility that it might increase my IDO1 function ?

(not my own comment, & paraphrased) the younger generations are depressed and anxious - but it's not because of social media - it's because previous generations have destroyed our environment, destroyed our living standards (0 hours contracts, poor wages, high debts, huge income disparity...

n=1. when i was younger & mostly healthy, i had episodes of POTS, especially in hot summer weather. more recently, a cardiologist who has some knowledge of POTS, reassured me that POTS can fluctuate in some patients - especially in hot summer weather - and recommended saline infusions if the...

yes, there's one ambiguity in one of Heidi's comments. but otherwise she's mentioned all the key points about the disease - prevalence, severity, triggers, management - and used language that the general public can understand. it was a short interview, with a lot of detail. Heidi is a superb...

when the literature review (page 15) lists "anxiety" as a diagnostic symptom, and forgets to include cardiovascular, neurological, immune & mitochondrial dysfunction ... then waffles on about personality and psychological disorders ... (it does get a little better, but as a Sport and...

slightly off topic - i wish it was easier for people to check their own genetic data against possible ME triggers/exacerbators. there are some websites that assist - eg Livewello - but still necessary for each person to write/run multiple reports (eg 19 different genes mentioned above), adjust...