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i believe the yellow headline is on same piece of paper as the other words. but yeah, offensive. poor selection criteria. psych questionnaires that may have ambiguous interpretations*. biomed samples (salivary samples, hormone testing) that might give the appearance of being sciency &...

i wonder if this is part of an SMC / BPS strategy, to divert attention from the withdrawn Cochrane paper, and spread more misinformation and stigma ? or does it take a lot longer to organise appearances such as this ? [edited to add: her book & her credibility will be obsolete soon :) ]

... and increased worry, comes from major life changes, while lacking information & resources to help you plan & cope. which is where peer support is helpful - discuss shared symptoms & concerns, discuss treatment & coping strategies. it's bizarre that normal sensible human responses to major...

has anyone estimated how many millions of people were harmed by this dangerous treatment ? this news is very welcome, but i wonder how much physical and emotional trauma was incurred, worldwide, through GET & CBT. admitting the faults in the original 'systematic review' would leave them open...

short answer: fibromyalgia needs a catastrophising scale, so that poorly trained psychology researchers have an opportunity to produce meaningless statistics, to justify their own false beliefs, and pretend that they are real scientists. same method applies for any disease that isn't yet...

it highlights the severity of the disease. plenty of emotional impact. some cringeful comments from the usual suspects - Andrew Lloyd (alleged ME specialist) and Nathan Butler (exercise physiologist & pseudo psychologist). four guests on stage - two are recovered elite athletes, one...

this logic becomes more convoluted, when you learn that Nathan Butler often applies amateur diagnoses of 'conversion disorder'. [from https://meaustralia.net/2018/10/15/insight-on-chronic-fatigue-syndrome-andrews-experience/] is Nathan Butler suggesting that ALL chronic health conditions are...

"in the last 15 years there aren't many credible advances in the [ME/CFS] research" says alleged ME/cfs expert. :banghead::banghead::banghead::banghead::banghead::banghead: - - - - - - - Australian TV - SBS Insight - 16 Oct 2018...

how do we change the world, so that instead of 1,000,000 trivial studies, :banghead::cry: we get some meaningful, useful, accurate research ? :emoji_cartwheel::emoji_bicyclist::emoji_rowboat::emoji_musical_score: the sad thing is, many patients are keen to contribute, and add to the...

I had IBS for decades, with episodes of relapsing remitting ME. After my ME became severe, i tried several elimination diets, to identify my safe foods. This has helped a lot - my IBS is now mild. I haven't tried faecal transplants. I've had gut microbiome treatment, through the clinic of...

personally, i dislike the vague criteria used in the introduction - no mention of post-exertional malaise, neurological, cardiovascular and mitochondrial dysfunction. i dislike the focus on 'activity' and 'fatigue', where the other factors are not measured (PEM, neuro, cardiovascular, mito...

your thoughts, please ? https://medicine-program.uq.edu.au/project/managing-chronic-fatigue-using-scientific-insights-n-1-studies

I just want to mention, because this has been a source of misunderstanding in the past. The “ME Australia” blog is not the peak national advocacy organisation for Australians. In fact, it’s not an organisation or group at all. It’s a blog, run by one person. In the past, there have been...

i found a link - this is what was spoken in the Australian Senate: http://parlinfo.aph.gov.au/parlInfo/download/chamber/journals/fdb68b77-3644-4556-9532-e3952deca92b/toc_pdf/sen-jn.pdf;fileType=application%2Fpdf - pages 3074-3075 Journals of the Senate / No. 96 / Wednesday 9 May 2018 33...

i'm confused ... which parts of this blog were spoken in the Senate ... and which relate to other locations / occasions / interviews ? many of the people quoted, live or work a long way from Canberra - was there a video link of their comments, that was aired in the senate ?

before the Shopping Bag Treatment researchers can gushingly imply that health anxiety is causing ME, & can be cured by CBT ... they would need to consider other factors that relate to their concept of 'health anxiety': - increased catecholamines (eg adrenalin) caused by the high rate of...

the Shopping Bag Study made me think of those fatuous suggestions to 'get a new haircut' or 'buy a new dress' when you're feeling a little low ...

This study needed a control group who are sitting upright (and supported) for the same amount of time, regularly. For people with mod/severe ME, this 'sitting' would give their autonomic / cardiovascular system practice at delivering blood to the brain, against gravity. Alternatively, they...

i am not even mildly surprised by the deliberate & elaborate deception. :banghead: :(

are there other important human processes that compete for the iron ? ie if iron supplies are low, haemoglobin might be adequate, but other things depleted. i've read that some bacteria compete for our iron stores ...