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  1. Suffolkres

    Study evaluating NICE, Oxford, and Fukuda prevalence

    I take the point but it was generated elsewhere and I did not want to rewrite or alter text without consent. I like the basic concept but maybe we should use it as a model and write our own? Use PEM for a start. I have not sent it to NICE. Happy to do a rejig and re draft which we/you could...
  2. Suffolkres

    Study evaluating NICE, Oxford, and Fukuda prevalence

    That's why we emphasised it in our stuff for GP education.
  3. Suffolkres

    Study evaluating NICE, Oxford, and Fukuda prevalence

    I agree with Jonathan's point- GPs should know this is a hallmark feature/symptoms. That's why we emphasised it in our stuff for GP education.
  4. Suffolkres

    Research Prenatal and infant exposure to ambient pesticides and autism spectrum disorder in children: population based case-control study BMJ 2019; 36

    https://www.bmj.com/content/364/bmj.l962?fbclid=IwAR3fqXGMTWXzJUb6oBDXmfVlpfSKBEPDJH2n2tBu7PaSzQMb-VUJSJrmhlc Conclusion Findings suggest that an offspring’s risk of autism spectrum disorder increases following prenatal exposure to ambient pesticides within 2000 m of their mother’s residence...
  5. Suffolkres

    Cognitive and behavioural responses to symptoms in adolescents with CFS: A case-control study nested within a cohort, 2019, Loades et al

    I wrote on Facebook; If an adolescent DID NOT have 'negative thoughts' coping with 'CFS' or 'cfs' ... (I believe that is of significance), I suggest they would be 'delusionally abnormal" or on happy pills or substances! Perhaps TC should be acquainted with this...
  6. Suffolkres

    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    ......and let's not forget this furor... says, Richard Horton, "The BMJ recently ran a vote on bmj.com to identify the “top 10 non-diseases.”1 Some critics thought it an absurd exercise,2 but our primary aim was to illustrate the slipperiness of the notion of disease. We wanted to prompt a...
  7. Suffolkres

    The Bigger Picture

    Its interesting fact that Mark Baker told me in January 2018 at the engagement meeting, that only two NICE Guidelines have ever been reviewed and 're written". Back Pain and ME! Gorden Wadell I believe ( following his death) had his adopted and promoted BSP approach...
  8. Suffolkres

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Miles Davis described "Django" as one of the best compositions ever, and in their book Clawing at the Limits of Cool, Salim Washington and Farah Griffin said, "It is almost like a poem in its economy and poignancy. With remarkable restraint and almost no concessions to the extroverted...
  9. Suffolkres

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Wessely at least has a good taste in music! Perhaps the ME community should adopt this as their new mantra? Think (My bold) Aretha Franklin You better think (think) Think about what you're trying to do to ME Think (think, think) Let your mind go, let yourself be free Let's go back, let's go...
  10. Suffolkres

    Steve Topple: The media is waging a coordinated war against chronically ill and disabled people

    Have had a reply from one who might be persuaded. I suggested they contact Jon Edwards and David T who's contact details I forwarded.
  11. Suffolkres

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    Some solidarity here https://dpac.uk.net/2019/03/biopsychosocial-lobby-and-right-wing-media-attack-pwme/?fbclid=IwAR0CTAq_VDl8x5ihDiqZrHXDBWPgtJoWUnvDNay1bryDugwBkHlKwX_OkPg
  12. Suffolkres

    ME charities' response to the Reuters article

    My post about him is above. Contact Editorial: Jerome Burne editor@healthinsightuk.org Media & further information: Gillian Waddell gillian@fuelrefuel.com or Susan Leigh Susan@fuelrefuel.com Webmaster: Peter Lurie/lightworkerarts.com | webmaster@healthinsightuk.org...
  13. Suffolkres

    ME charities' response to the Reuters article

    I have just emailed Jerome to alert him to our plight!.
  14. Suffolkres

    ME charities' response to the Reuters article

    Can we not ask someone like Jerome Burne to step in and write a good riposte? I am not sure if he is on S4ME but he could be alerted and invited? Jonathan perhaps? Contact Editorial: Jerome Burne editor@healthinsightuk.org Media & further information: Gillian Waddell gillian@fuelrefuel.com or...
  15. Suffolkres

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    He can't just resist commenting can he..... michael sharpe Retweeted Simon Wessely‏ @WesselyS Mar 16 Replying to @inpsychfulminds @profmsharpe and Some say it’s all about the science, citing PACE. But not true - it’s been going on for 2 decades before PACE which remains a good trial and...
  16. Suffolkres

    Michael Sharpe on Radio 4 Today / Tom Feilden BBC (18th march 2019)

    A good resumee re this issue, BBC coverage and media/ Sharpie and friends.... (Claire Fox) the sister of Fiona Fox, the SMC’s chief executive. "Claire Fox @Fox_Claire Brilliant interview with @profmsharpe this morning on @BBCr4today Depressing that it was due to the distortion and...
  17. Suffolkres

    Michael Sharpe on Radio 4 Today / Tom Feilden BBC (18th march 2019)

    ... Frances Ryan (Journalist) | Wiki & Bio | Everipedia https://everipedia.org/wiki/lang_en/frances-ryan-journalist/ Frances Ryan is a journalist and political commentator based in the United Kingdom. She writes extensively on inequality, disability, and social mobility for The Guardian as both...
  18. Suffolkres

    Rod Liddle in the Times: "Always fatigued — yet they never tire of claiming their malady really is a virus"

    So what's to be done about it without giving the issue/Liddle/Times satisfaction and oxygen?
  19. Suffolkres

    Rod Liddle in the Times: "Always fatigued — yet they never tire of claiming their malady really is a virus"

    Rod Liddle And the same old diatribe, same old rehash .....of sensational disrespectful contemptuous journalism- but hey, he gets paid for it ?????????? LOads of money, ££££££££ 2015........ "Do you ever wake up worried that you have tiny fibres growing beneath your skin, all along your...
  20. Suffolkres

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Excellent and to the point! One such scientist comments, PACE trial for chronic fatigue syndrome (still) being put through its paces: a reply I'm bringing the paper published by Michael Sharpe and colleagues [1] to your attention today in the interest of balance and peer-reviewed 'right to...
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