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Yeah this is a bit confusing, how did they get in the patient registry if about half don't meet any of the me/cfs criteria? Because patient registry data was used to clasify the patient. Also, only 15 met all 3 criteria, so it's kind of a troubling result. It also might be a problem with the...

Doesn't look BPS at all, just normal health economics. I wouldn't expect BPS from this group of researchers. There looks to be a lot of interesting demographic data for people who like that sort of thing. For instance, of any criteria diagnosed, 65% were unemployed and so on. I don't know how...

I believe 4 or 5. There's a thread on PR for outcomes. There's also a story of a woman who got much, much worse in one of these threads. But most getting the surgeries are sequestered into private facebook groups and I'm not in them, so it may be many more. The solution recommened is then new...

Just wondering about 90% satisfaction (your satisfaction guarauntee with CBT, buy now and save 20%). Very limited information on the methods for this result. I know what likely happened is the therapist, after getting to know you, asks the question are you satisfied with this process? Which is...

It makes no sense to me to do an actigraph over 24-hours. Alone we know they got $75. Maybe some had fatigue but went out to spend it. Some tucked it away. Already the study messes up the first day of it's results But also, maybe one just wanted to do more that day regardless of the study...

Wow, so they really improved from the CBT increasing cortisol study (https://www.kcl.ac.uk/ioppn/depts/pm/research/cfs/publications/assets/2009/Robertssalivary.pdf), where they opted for no control group at all. And that reasoning is exactly given in the the cortisol paper. You can't have...

Yikes, but I guess it's higher than I would've expected. It, and I don't want to sound harsh, but it strikes me that the immense success of the psychology sector has been to popularize and sympathize with common psychological diagnosis while destroying the "functional" ones. We have apps now...

While that's interesting to hear, I suspect he would fit into the "bio"-psycho-social side. And, perhaps argue CBT helps undue this ongoing inflammation by calming the brain, reducing negative thoughts and resetting normal patterns. I had heard the NIH or OMF or perhaps both we're collecting...

This is from the Griffith University group, and particularly L Barnden who is probably the most prolific brain imager in me/cfs. They pre-identified 46 areas of interest and the most interesting finding looks to be However, the mean differences are not big (one big numbers corresponding to...

Anyone on twitter (I am not) might want to show this paper to Dr. Keith Geraghty as it seems very relevant to the question he asked. Ironically, it's a BPS paper that seems to undermine the position he was querying.

This is a small, self-controlled study with a long, variable treatment (CBT ofc) duration up to 6 months. 47% were "responders" to CBT. (sidenote: in this case, I believe as the outcomes are subjective by the therapist rather than the patient). The authors include Wessley and Chalder. The...

https://www.kcl.ac.uk/ioppn/depts/pm/research/cfs/publications/assets/2009/Robertssalivary.pdf

I think the question must be is cortisol lower in me/cfs than in other chronic illness. I think the last reference I heard was that OMF found cortisol levels slightly lower in the morning but normal throught -out the day. I can't remember where that was from or if it was even published. e.g...

Very interesting to see Fauci mention me/cfs. But, I think what matters, is what he says about it as we approch the magical transmogrification deadline (thanks for the word @chrisb) when early post covid might actual qualify as me/cfs. Perhaps, September. Because he has developed quite a...

Congrats @Chris Ponting @Andy and everyone else involved. I'm shocked you were able to get so much funding so quickly, a remarkable feat in me/cfs research. I expect this will take a long time, but I'm really happy to see such a massive project underway.

Same. It increases my fatigue levels a bit, not enough for full blown PEM but gosh does moving feel good or sometimes necessary. One irony of my experience with me/cfs is how much harder it is to sit and relax.

Finally, reading the facebook post from Whitney. It's very strange, I share some similarties, just I'm heck of a lot better (and I'm doing very poorly!). Adrenaline can be an asset for me as does ativan. I rarely crash from adrenaline, but it's possible others do, and very badly. I think I have...

Hey, I have taken amoxicillin & azithromycin in the past 2 years. I was wondering if they would have effectively taken care of SIBO as they are broad spectrum or if just the Rifaximin is effective. Or if Rifaiximin is just used because it stays in the gut. Thanks.

Don't forget the teachers, a new and bold twist in me/cfs research from Bristol Univeristy. The best part about this garbage is you can write the psych theory whatever results you get. Oh, I missed the second part Straight from the LP playbook. This setting allows massive, uncontrolled...

I just don't see the need for a nonspecific hypothesis, but in any case you would think his research has been public and specific enough that his position is established in those areas. That and the me community is small and knowleadgable, we know what few researchers have contributed and try to...