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  1. Cheshire

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    The situation really is muddy. Someone like Vogt, for example, is on purpose very provocative and has started promoting his sick views (LP amongst them) using PwMEs' deaths to generate reactions amongst us. Then he waits with glee at the perspective of all the outrage he'll get, and retweet with...
  2. Cheshire

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    Except that in shots to gradually reduce an allergy to nuts, the syringe is not full of nuts... So another groundless analogy which fells flat.
  3. Cheshire

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    I understand some of your concerns @Bill Part of me think we should stick to facts and remain polite, that we clearly have lots of arguments at our disposal (not out of some kind of moral concern, but because anything a bit strong could be used against us and backfire). But at the same time, I...
  4. Cheshire

    Tuller, Trial By Error: Our Latest Tango with BMJ Open…

    http://www.virology.ws/2018/04/02/trial-by-error-our-latest-tango-with-bmj-open/
  5. Cheshire

    Merryn Crofts - media and inquest

    It's an automatic translation site, there are more and more of these. They aren't even edited, it's pretty bad, I don't know who reads them. (eg. of bad translation: "Elle pesait moins de six kilos", she weighted less than 6 kilos, original version: She weighed less than six stone...). edit...
  6. Cheshire

    PACE trial TSC and TMG minutes released

    I wouldn't be surprised if they didn't even understand the enormity of this decision. For them the subjective reports are the proof they are right and the incongruity of actigraphy results are just seen as an anomaly, that they (more or less consciously) do not want to explore, to avoid facing a...
  7. Cheshire

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Seems like MS is getting quite nervous. Iv'e tried to understand how being a patient could be considered as a COI, but I can't find a good reason. Only a perverse mind would (someone thinking that all these bastards don't want to get better, that it's part of the illness, which is just disgusting).
  8. Cheshire

    Dutch Health Council on ME/CFS tomorrow on national news

    ME is not 'purely physical' Hans Knoop https://translate.google.com/translate?hl=&sl=nl&tl=en&u=https%3A%2F%2Fwww.nrc.nl%2Fnieuws%2F2018%2F03%2F23%2Fme-is-niet-puur-lichamelijk-a1596899&sandbox=1 https://www.nrc.nl/nieuws/2018/03/23/me-is-niet-puur-lichamelijk-a1596899 Thanks to @Grigor
  9. Cheshire

    Syndrome de fatigue chronique : Que conclure de la réévaluation de l’essai clinique PACE ?

    This website has published a few articles on MECFS these last months, always criticising the BPS school. The main problem is that they are badly written, it reads like google translate texts slightly edited. Some sentences are really difficult to understand. That's a pitty, because the content...
  10. Cheshire

    BBC: Chronic fatigue trial results 'not robust', new study says

    I don't know if that is what @Snow Leopard was refering to. Simon Wessely's comment under @Jrehmeyer article in statnews: https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/comment-page-6/#comments (page 2 of comments)
  11. Cheshire

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    The Canary (the tittle is a bit over the top IMO) The mainstream medical community just declared war on people living with ME https://www.thecanary.co/discovery/analysis-discovery/2018/03/22/the-mainstream-medical-community-just-declared-war-on-people-living-with-me/
  12. Cheshire

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    The Daily Mail: Findings of chronic fatigue study `not reliable´ No mention of the SMC 'facts'. http://www.dailymail.co.uk/wires/pa/article-5532233/Findings-chronic-fatigue-study-not-reliable.html
  13. Cheshire

    United Kingdom: Science Media Centre (including Fiona Fox)

    Well, that is a lie, because the type of CBT tested in the PACE trial has nothing to do with the CBT that helps people coping when suffering from other illnesses. From their protocol: We must fight against this normalisation of their CBT, try to prevent them from sweeping the false illness...
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