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Just FYI, I learned about that WebMD story (previous post) from a tweet posted by @Tom Kindlon

These results will NOT be a surprise to anyone on this forum. :rolleyes: Also, I did not see any date for this story on webmd.com! (but maybe I missed it?) But I know this study must be relatively recent since the data collection was done from Jan-June 2021. Chronic Fatigue Syndrome: The Need...

Announcement from @MEActNet on twitter - #MEAction and @itsbodypolitic will be hosting an Unrest Panel Discussion this Sunday, March 27th at 10am PT/ 1pm ET/ 6pm BST. We will discuss the relationship between #LongCovid & #MyalgicE from a clinical, patient, & societal perspective. #pwME...

Moved post Editorial in The Michigan Daily: Michigan Medicine needs to address post-viral illness https://www.michigandaily.com/opinion/michigan-medicine-needs-to-address-post-viral-illness/ Very good op-ed piece, includes discussion of both ME/CFS and Long Covid.

"Some hospitals ask patients, visitors to remove N95s, citing CDC" :nailbiting::bag: https://www.politico.com/news/2022/03/16/hospital-mask-cdc-covid-00017556

Thanks, @DokaGirl ! It's helpful to know you had EBV confirmed in 1985. Yes, I've had tests for bacteria before - strep throat, TB - but not for viruses. Digression: I had strep throat three times in my senior year in college (1982). After my third time, I suggested that my boyfriend get...

My ME/CFS was apparently triggered by a virus. In late Dec. 1989 I got sick on a plane. We were returning from a trip to India (family visit). I was sick for more than a week - maybe 9-10 days? But there were no tests done to see what the virus was. I don't know if that's because of where I...

Gift link (no paywall for 14 days) for the Washington Post article that @rvallee posted in previous message, for anyone who can't access it: https://wapo.st/3JgKTwI I haven't read it yet but it looks interesting.

I can't follow the whole discussion, and I'm not commenting on the categories (too complicated for me), but I saw this line and was confused. A big trigger for my orthostatic intolerance is standing still. I can only do this for 4-5 minutes before symptoms start. Sitting upright is also a...

NIH has started an ME/CFS newsletter. From an email: The newsletter ("VOLUME 1: ISSUE 1 MARCH 11, 2022") is attached (PDF file).

NIH study on masks, released today (March 10): Mandatory masking in schools reduced COVID-19 cases during Delta surge

Thanks for posting this editorial! I wish more health care professionals would see things this way. Health care professionals need to learn about PEM/PESE (post-exertional issues) and warn patients about trying to push through symptoms.

Washington Post - Covid long-haulers face grueling fights for disability benefits (gift link - no paywall for 14 days) Article mentions ME/CFS, but unlike other Washington Post articles it uses the term "chronic fatigue syndrome." At least it's not "chronic fatigue." Those of us who have...

Maybe it means relative to whatever is baseline? My sleep is never good, even on "good" days, but it is definitely worse during PEM. Paradoxically (when compared with "normal" folks) my sleep improves when I substantially increase my rest for at least a few days in a row (the longer I can do...

I posted a "gift" link to that Washington Post article so that non-subscribers can read it: https://wapo.st/35O8hmf Gift links have no paywall for 14 days (first posted on Wed, Mar 2nd, so add the 14 days to that). After that time the link "expires." In the future I'd be happy to post other...

I assume this is the paper that Dr. Jason is going to talk about in the webinar scheduled for March 16. https://www.s4me.info/threads/webinar-implications-of-me-cfs-case-definitions-for-long-covid-dr-leonard-jason.24839/

Webinar: “Implications Of ME/CFS Case Definitions For Long Covid” Guest speaker: Dr. Leonard Jason Wednesday, March 16, 2022, 4 p.m. EDT (1 p.m. PDT, 8 p.m. GMT) Full announcement - https://usawg.wordpress.com/2022/02/26/special-event/ Click here to register

This thread has news updates from the BHC. For threads on useful resources provided by BHC see the Resources forum. Ever-Growing Awareness by Lucinda Bateman, MD Mar 2, 2022 https://batemanhornecenter.org/evergrowing-awareness/

Automated tool to help folks in the USA to contact their senators: Ask your Senators to support the CARE for Long COVID Act! URL for those who need/want it: https://t.co/q6r4Wt60dL Tweet from Solve ME/CFS (@PlzSolveCFS) with link to this tool: Hashtag is #CAREforLongCOVID

Yes, the introduction of a bill is just the beginning. It's good news that three senators support this, but if this bill doesn't pass both house and senate, and then get signed by the president, it's not a law and there's no funding for anything. Folks in the USA can contact to their senators (...