Search results

Twitter post from ME Action:

https://www.mightycause.com/story/Walktober A nonprofit fundraiser supporting Myalgic Encephalomyelitis Action Network Inc

Webinar: “Double-Edged Sword of Research for BIPOC" Thursday, Nov. 11th, 5:30-6:30 PM Pacific Time. Speakers are Jaime Seltzer from MEAction and Leticia Vaca from Urban Health Group Wellness. Register here...

When I clicked that link it didn't seem to match the announcement being discussed. Not sure what happened... At any rate, here's a link from the Ford Foundation website: https://www.fordfoundation.org/the-latest/news/ford-foundation-launches-first-ever-us-disability-rights-program/ I saw a...

"Interview with Dr. Lucinda Bateman, founder and medical director of the Bateman Horne Center in Salt Lake City, Utah. She is recognized worldwide as an expert in the diagnosis and treatment of ME/CFS. In this episode, Llewellyn King talks with Dr. Bateman about how she became involved in the...

Are monoclonal antibodies available in pill form? I thought that one of the benefits of molnupiravir was oral delivery, no IV required - https://qz.com/2068158/mercks-new-covid-19-drug-is-an-antiviral-pill/

NPR's Michel Martin speaks with journalist Ed Yong about his piece in The Atlantic titled, "We're Already Barreling Toward the Next Pandemic." https://www.npr.org/2021/10/03/1042883030/why-we-need-to-prepare-for-the-next-pandemic [6 minute interview, full transcript available] A couple of quotes:

I have not been reading/following this thread but I saw this article in Scientific American and thought it might be helpful: https://www.scientificamerican.com/article/why-we-need-to-upgrade-our-face-masks-and-where-to-get-them/?utm_source=pocket-newtab I don't think it's behind a paywall. A...

Sept. 29 article from NPR about this study: https://www.npr.org/sections/coronavirus-live-updates/2021/09/29/1041501387/coronavirus-long-covid-study-plos-medicine

Recordings of both days of this NIH videocast (Beyond the Symptom: The Biology of Fatigue) are now available. Day 1 - https://videocast.nih.gov/watch=42563 Day 2 - https://videocast.nih.gov/watch=42565

Bumping this thread to remind anyone who wants to register for the 2-day NIH webinar scheduled for Sept. 27-28. Registration is required but I didn't see any fee when I went to the registration page. No idea whether it will be any good, but here's the agenda (PDF) -

Indeed! In fact, I saw another comment just like yours on twitter this morning: "unexpected to WHOMST because disabled people told you this in FEBRUARY of last year" I still remember seeing a simulation in late Feb. or early March of 2020. It showed a bunch of dots representing people. After...

I wish I could help, but all I can think of is this website. It's mostly about how to get social security in USA, but maybe something on this website will also be applicable to the process you have to go through in Canada. https://howtogeton.wordpress.com/social-security-disability/...

A recording of this webinar is now available on the Human Health Project's YouTube channel: https://www.youtube.com/watch?v=3O_1wAfSPC8 Note: I'm posting this on the "News from Solve M.E." thread since it's a reply, but I wanted to note that two of the participants (Terri Wilder & Wilhemina...

#MEAction has announced an official membership program. Announcement on twitter (with a short video): https://twitter.com/MEActNet/status/1435634990717538312 More details on website: Membership starts at $5 a month. Free membership is also available to those who can't make a financial...

I just saw a twitter thread about a study comparing the transmission of coronavirus by vaccinated vs. un-vaccinated people. First tweet - "A study out of the University of Illinois shows vaccinated individuals with a 'breakthrough' infection are LESS likely to shed infectious virus at a given...

A recording of this webinar - The Long Haul: What Every Person Should Know About Long COVID - is now available on YouTube: https://www.youtube.com/watch?v=1rSb2Ay8AWo

I don't know, but here's a general comment from the Medscape article :

Published today in the Mayo Clinic Proceedings: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management Lucinda Bateman, MD, Alison C. Bested, MD, Hector F. Bonilla, MD, Bela V. Chheda, MD, Lily Chu, MD, MSHS, Jennifer M. Curtin, MD, Tania T. Dempsey, MD...

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS https://www.meaction.net/2021/08/23/meaction-6-me-orgs-call-for-cdc-to-change-how-it-tracks-me-cfs/