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I’m laughing at the thought of us building nests.

1980s called and asked for their idea back.

“the bastards don’t want to get better”

Yes, even now that the reality of postviral syndromes can no longer be denied, with millions of previously normally functioning individuals succumbing to disability en masse, he finds a way to exclude us.

Fauci isn't some random member of the public. He was the director of NIAID from 1984 until like two minutes ago. It's ok to change your mind and evolve your positions over time. We all do. It's not ok to pretend like you didn't just spend 40 years engaging in minimisation, denial and ridicule of us.

Fauci was singing a very different tune during the Incline Village era of ME/CFS.

Funding is one factor. Another issue is staff moving on. A lot of small/exploratory studies in medicine aren't carried out by professional scientists but rather registrars (residents) who move from one post to the next every 6-12 months. There may be no one left with interest in the same topic...

The responses to Carson's uninformed tweet are just great. He's really getting roasted. It's clear he didn't look at the study and tweeted that to try and dismiss it out of hand. These patients were not on bedrest. I'm sitting here with a similar step count as the people in this study and I'm...

What nonsense. He's going to continue telling his patients their PEM is actually DOMS and they should just push through with "rehabilitation".

Having ME/CFS in a low-income country is extra hell because you can't fall back on govt assistance and you're at the mercy of your relatives who may be abusive or disbelieving.

Sickening.

Most grant reviewers and all major medical school textbooks regard this illness as psychosomatic.

I can't drink a drop of alcohol. Instant nausea, vertigo, general malaise/weakness. I also can't drink coffee. Instant tachycardia.

Also, hypersensitivity to meds, vitamins, lights, noise etc.

This abuse will continue until we have a laboratory test.

In paediatric “CFS/ME”, if you don’t say you’re better, they start legal proceedings against your parents.

Crawley takes an inordinate amount of time to publish her trials. I feel like we were discussing FITNET and MAGENTA before this forum even existed.

If you already know it works, you wouldn't be trialling it. As stupid as these headlines obviously are, they really harm us. They run these marketing scams hoping parents will read this trash in the BBC and enrol their children in the trial.

The above description of the project is lay summary. The technical summary is below. Aren't these Celltrend antibodies that don't differ between patients and controls?