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You’re right. There’s nothing that happens at these conferences anyway, other than academics getting several free (by that I mean paid by the taxpayer) vacations per year in attractive locations conveniently arranged near the weekend. This conference travel is in addition to the obscene amount...

I’ve now watched Systrom’s presentation in its entirety. I find it hard to reconcile some things. He strikes me as a serious person who doesn’t give off that used car salesman vibe that 99% of “CFS specialists” do. Yet, his statements don’t map onto the data shown on slides. He says preload...

There are cases of people never seem to overcome the grief and get on with their lives. Even years later all they seem to talk about is their dead relative. Usually though a mood disorder or substance misuse diagnosis will cover this pathological reaction. So I’m not quite sure why this new...

This seems quite similar to the inpatient “rehab” programmes you see these days for FND. Walking a few steps further between bars is interpreted as treatment success. In actuality, a reduction in overall physical activity took place if you consider that you don’t have to do any chores or food...

Good old activity substitution.

Coyne’s article rings true. The peer review system is crazy and must go. I’ve experienced many weird, incorrect reviews over the years. Not ad hominem abusive like what he describes at the BMJ (which is a huge cesspit) but just people not reading your article or saying wrong things and the...

That’s the thing. The psych framing presupposes that the patient hasn’t tried the blindingly obvious solution first which is to exercise your way out of it. They are saying we are that stupid and insane that we just took to bed and never tried to take any action to get out of it.

The whole negotiation thing implies that the patient is refusing to do more activity for no reason and that the job of the therapist is to coax them into doing the right thing by negotiating little increments each week. It’s very insulting and wrong.

Another one bites the dust.

Not surprised to see this link. IC is one of the symptoms I’ve struggled with as part of my ME/CFS.

You’re doing too little AND too much.

Another scam.

In practice FND is anything they can’t diagnose as real D.

The losses far exceed the gains as far as I can see. Losses include moronic pimply junior doctors feeling entitled to speculate about your mental state and motivations.

FND is just the name neurologists give to ME/CFS (and other unexplained symptoms). So it’s not surprising at all that FND people are involved in this.

But truly delusional people who think their guts are rotting or that they can’t swallow get medically treated all the time to give them nutrition by other means. So why are we being singled out for death?

I don’t really understand what the hell is going on in the UK. Even if you believe the problem is psychiatric, when the case becomes this severe you still manage it medically. It’s done every day with severe cases of anorexia, depression etc. so I don’t understand what the issue is. The cause of...

Yes, or losing credibility. I mean, this stuff is so prevalent now.

I’m not in the UK but I heard a psychiatry colleague mention FND and cite Stone’s incorrect prevalence estimate in neurology consults. I had never EVER heard anyone use that phrase offline in my life previously so the cancer is definitely spreading far and wide. I almost replied “ACTUALLY...

I’m surprised he’s able to get away with having this website up and advertising his nonsense directly to patients. If this were a medicinal product not CBT he would have been shut down by the regulator already. There is no evidence for his claims. The CODES trial definitively showed that CBT...