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85% response rate is huge and it shows just how grateful people with ME/CFS are for good research.

I take it FCD is some new name for brain fog.

Another person with nothing new to offer inserting herself into a conversation that has been going on since before she was born. The issue here is that no matter how many caveats and disclaimers they put in academic papers about “association” and “risk factors”, the midwit clinicians who...

I just a priori assume that anything appearing in top psychology journals is fake. The more impactful the journal, the faker.

They made a huge mistake picking number of seizures as the primary outcome. That's a relatively objective outcome that's harder to bias through brainwashing than asking dopey self-report questions about mood etc.

Same with multiple chemical sensitivity (MCS). https://www.sciencedirect.com/science/article/abs/pii/S0273230083710433

Also, no plausible explanation for why one person ends up with nonepileptic convulsions, while another ends up with pain, yet another with twitching in foot, all due to magical effects of emotions/stress.

It’s quite concerning that GPs are allowed to hand out psychotropic medications. GPs don’t know anything.

I recall a case like this being covered on the BBC. If I recall correctly, she had an ultra rare form of epilepsy that doesn’t show up on an EEG. But due to early life adversity, deprived background etc. it was dismissed as psych of course.

I can’t even dismiss it as incompetence or malice on behalf of the individual doctor. The whole system is literally geared to funnel patients into the psychosomatic scam - hordes of therapists, apps, self-help books.

The article is quite confusing. I can’t work out what the proposed diagnosis is. Why would it take 70 doctors to diagnose SLE? Then they inform us that the antibodies are actually against glutamate receptors so I’m assuming they’re referring to anti-NMDAR encephalitis. Then we’re told that there...

The WaPo story is very scant on details. It’s difficult to say what’s going on or what autoantibodies they have. Neuropsychiatric SLE is a known entity and there is absolutely nothing game changing or informative here other than mid-1990s third rate hospitals in the US being crap at ruling out...

Recently there was a study that showed that these autoantibodies occur in normal controls at the same rate as patients. This DTI study has no controls and is studying a concept that’s already been debunked.

Doctors refuse to read a one page pamphlet. This will get read by no one.

The thing is, to get through medical school and residency, you need to have huge energy levels and endurance. So of course they can't fathom what it's like to be us. I don't think the abuse will ever end.

It's a cross-sectional study so it's not possible to establish which comes first. Ofc, they assume that addressing psychological flexibility would treat FSS.

sounds like BS made up concept.

Participants were undergrad students who received course credits in exchange for participation.

Also, the symptoms may appear to settle over time because the patient learns to control them, to an extent, by reducing activity levels to almost nothing. I was much more symptomatic with daily huge crashes early on because I had no understanding of what was going on and was overdoing it. Try...

Stone’s neurobabble website says that symptoms like tingling and fatigue etc are FND. Basically, any symptom imaginable experienced by nearly everyone.