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As someone who falls into that demographic group + my antiphospholipid syndrome, I am worried about these reports. But as an ME/CFS patient, I am also worried about ending up in a dirty, noisy hospital abusive staff with covid, or dying from it. So it's hard to know what to do.

Of course, we've all dealt with really low quality people who became tenured professors because the schmoozed the right people in power. I think sadly though to most people his credentials will appear impressive and they will believe him when he says that Long Covid is fake and that he recovered...

There were stories like that coming out of Norway after unblinded studies of rituximab. Controlled studies showed it was a placebo effect. Surely as a professor of medicine he cannot be this naive.

The WSJ oped section is really bad. Thankfully it's behind a paywall so its societal reach is pretty limited. In Europe, the most progressive publications like the Guardian have been atrocious in their coverage of us, with an unrelenting pro-BPS editorial line. I don't think we have any friends...

Maybe this is what's behind the BPS craze claiming that 60% (or whatever made-up number) of GP visits are due to all-in-the-mind symptoms. Maybe they want a CBT therapist - or, heck, why not the receptionist - to be authorised to deny you the ability to even get an appointment based on any "risk...

Interesting and encouraging to hear. Here on the other side of the pond it most definitely is the prevailing view. I don't think the BPS view of things would get dislodged from its pedestal even if PACE got retracted, which it never will anyway. They would just fall back on the Cochrane review...

This is astonishing. I suppose if you a priori disregard the decades-long consistent pattern of patient reports that doing exactly what is being suggested here made them worse or even bedridden then yeah sure there is no evidence that it causes harm.

How, specifically?

It's amazing what these people are willing to do to patients just to save the NHS some money.

I've been wondering about this too. Maybe they saw how successful SW and Crawley's approach to career-building has been. If these people had gone into internal medicine or something, they would have been a nothing nobody that no one's ever heard of. But by spotting a niche very early on - a...

Any article that mentions the three p's is BPS. No one else formulates a diagnosis in this way, not even psychiatry.

Low body temp is correlated with PEM for me and when I was severe my temp was low most of the time.

They put me on the same drug 20 years ago and my reaction to it was as you describe because, in hindsight, the issue was postural. I think a lot of these long covid patients will find themselves being treated for "anxiety". The average doctor really doesn't know anything about this stuff and...

Certainly possible that people are gagged from speaking out. That was a horrendous case but what stood out for me at the time was that it seemed unusual unlike in the UK where families of kids who can't attend school due to long-term illness are subjected to this sort of terror all the time.

Thank you for bringing these patient reports to our attention. Those are incredibly disturbing posts which to my mind discredit this retrospective chart review. It would seem, based on these reports, that at least some patients attending that clinic feel under immense pressure to say to this...

In other words, there are no papers showing what it does at 0.25 mg.

How do we know this? Where are the pharmacodynamic studies of these near-homeopathic doses? I'm not talking about "low dose" aripiprazole as understood in psychiatry, I am talking about these ultralow doses being used in ME/CFS.

I also get the impression that things are worse in the UK. There is a lot of pressure in the US to never take days off, a toxic cultural belief that every problem has a solution and every illness has a cure, weird lack of worker protection laws etc. but at least in the US the healthcare system...

If people are claiming positive effects from very low doses, does it not logically follow that side effects could occur at those same doses? ME patients are very sensitive to medications.

Years ago Stanford affiliated folk were enthusiastically pushing antivirals, then a gout drug, then naltrexone. Each was claimed to help many. Of course none of these treatments do anything beyond wishful thinking.