All this sounds eerily familiar. And the medical profession seems to be funnelling people into unproductive psychological counselling etc.
I wonder how long they'll be able to continue to deny the existence of ME/CFS for now that we're apparently facing a new tidal wave of cases...
Excellent idea. If many people develop ME/CFS after this epidemic, it will be much harder for the BPS lobby to claim it's all due to false illness beliefs.
But these patients were not experiencing spontaneous recovery. They were mildly improved at best and as Trish pointed out the results were comparable to the placebo arm of the RTX trial. Their SF-36 score was still terrible compared to the median score in the general population.
I strongly...
Ok so they were "mild-to-moderate" not mild. The subgroup of responders was doing 3,600 steps per day on average before the treatment. That's quite a lot considering that half of the general population walks less than that...
It's hard to know what to make of this.
On the one hand, we know that this therapy has been around for, what, 20 years and that thousands of ME patients have spent money pursuing it. Many new people get roped into doing it each year and we've heard reports of patients being pressured into doing...
We've been down this road before with open label rituximab studies before the blinded RCT showed it was trending toward being worse than useless.
The results here are strongly suggestive of a spontaneous improvement / regression toward the mean / placebo response in patients who were probably...
Sickly people with chronic illnesses are likely to have sickly children, nothing surprising there. Why does our society have to psychologise everything?
Supermarket here in Ireland actually had staff at the entrance only letting in people in batches every 45 minutes. Absolute panic and chaos. I'm glad I prepped 2 months ago when everyone thought I was crazy.
I used to be in the "sick but never sick camp" for almost a decade. A few years ago, coinciding with an improvement in my overall ME/CFS, a cold came and since then I've had a cold once a year every winter around November time. They last a long time and affect me much more than other people...
Videos like this are popping up on social media where Wuhan sounds like a zombie movie. Don't know if it's fake news but if it's real it looks like regular people are losing it from being housebound for what must seem like an eternity for people who don't have ME/CFS.
Yes, and the problem is worsening. I can't tell if it's due to ME or the fact that I haven't done any writing in so many years due to doing everything on the computer. When a new bank card arrived I realised I couldn't quite remember how to sign my name.
Interesting thread on chinese plumbing and sewage:
Would explain why so many videos have emerged on social media of authorities welding shut entire apartment buildings.
More than the virus itself I'm concerned about supply chain disruptions. So many critical industries have been outsourced...
The expansion of the CBT lobby into medical illnesses like schizophrenia (with disastrous consequences for patients who require medical treatment for their severe symptoms) is really just a turf war between psychologists and psychiatrists.
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