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Me neither. I am very grateful to Jen for her advocacy. I think it's been effective. I just couldn't relate to her presentation at all and as a result did not show the movie to anyone in my non-ME family/social circle. There were also medical claims in the movie about NK cells, mold...

That's right, just as many who pursued rituximab got worse from the physical effort of getting to and from the treatment.

It seems highly unlikely that CCI can cause symptoms of ME/CFS. That of course doesn't exclude the possibility that someone has ME/CFS AND CCI or has CCI but was misdiagnosed with ME/CFS. Anecdotal recoveries from ME/CFS following surgical correction of CCI do not tell us anything about the...

Their entire careers have consisted of Machiavellian quest for power and denying patients the ability to survive in the world so that insurance companies and govt can save $ and they have the gall to talk about morals.

I actually can't bring myself to read this. Everything written by that man is pretty heinous.

Me too. And I doubt it was placebo because no other drug did anything whatsoever and this one made me able to walk around the hospital ward some having been bedbound for many months previously. Wore off after 24 hours or so.

Me either. This is just the latest in a long line of analogies psychiatry has used to try and understand the brain. As technology has evolved, so have these analogies. If you go back 100 years to Freudian psychoanalysis times, it was a hydraulic or steam valve model of the brain purporting to...

Good to see this. I've been waiting for the other shoe to drop for years on the whole issue of CBTp, an obvious fraud.

Yeah. Of course they dismiss the tachycardia, dyspnea and other cardiovascular symptoms as being due to cardiovascular deconditioning.

Normal muscle strength and fatigability in patients with effort syndromes BMJ, 1988 Their definition of effort syndromes includes ME and Royal Free disease:

The data do not justify the chirpy title, to say the least.

This sent a cold shiver down my spine.

I actually completely agree with Vogt on this one. He's wrong about other things but he is right that the "measure everything" approach to medicine is a scam.

This dude clearly has a personal axe to grind. It would be interesting to hear the backstory. My money is on the mother. He is over invested in his hypothesis and way too emotional and rage-filled to be a disciplined thinker. He should not be involved in this field whatsoever.

NICE guidelines seem to be primarily about limiting access to specialist referrals and cost management for the NHS, patient care a mere afterthought. I read in a journal article that up to 30% of initial referrals to UK neurology services are for "functional symptoms". This doesn't seem to give...

I will throat-punch the next person who asks me, "Have you tried yoga?"

I don't think this should have been pitched to the media before independent replication. This has the potential to hurt us as badly as the XMRV fiasco.

Open data for all except those nasty ME/CFS patients who need to shut up, go sit in the corner and be grateful for CBT/GET.

There clearly is a push to eventually reclassify everything they can't understand as FND. The underlying belief being that there is only one functional disorder but with different manifestations which gives rise to myriad diagnoses.

Most psych studies are conducted on bourgeois college students in Western countries. The definition of trauma keeps expanding therefore to include woolly concepts like 'emotional abuse' and hurty words since most such people never experienced any real adversity in their lives.