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I count that as the first stage in PEM. I get wired then energy crashes and symptoms ramp up.

Of course we shouldn’t be surprised he is trying to be seen to be saying the right thing and of course that makes all us PWME who say he’s a hypocrite just look like the terrible people picking on him he’s always had to deal with - poor sausage

And apparently hasn’t explored the history of post viral illness

Utter hypocrisy from his ‘eminence’

Ah ok i was scratching my head til I spotted the footnote.

When I’m in a positive frame of mind about it this is what I hope, that trying to use their psychosomatic bs on this new group simply won’t wash. when less positive the concern is there will be a blinkered attitude by all concerned Patients medics health professionals that Covid is somehow...

Pyramid selling

Nowadays in retirement i try to plan things so I have enough time to think things through before any big decisions. Treat it like a work task and make notes. Also at times have to say no I need time to think I’m not deciding now I will come back to it tomorrow. As moderate ME at my worst end...

I wouldn’t know - is there information to compare this with other viruses

You’re doing a great job :thumbup:

Oh wow that’s great news

I don’t think I’ve ever picked up on NAC being something that helps some with tired but wired insomnia. Very interesting and one I will look into.

There are many people in the public who struggle with written material for a variety of reasons. See this blog for more information from a content specialist https://contentdesign.london/reading/dumbing-down/

I think it is positive that they are able to offer a limited hours role that’s still paid. As some who only 2 years ago had to apply for ill health retirement because I could not reliably maintain 15 hours a week working in a team this sort of role where you can work at your own pace for a few...

Yep all those slightly overripe pieces of fruit have been turned into a wonderful ‘fresh’ salad.

Nope. Are they deliberately trying to exclude patients?

Massachusetts based - would hope the ME group there have this on their radar - maybe worth contacting them in case they can put in a complaint of some sort?

Emotion regulation training sounds very dodgy but I’m not surprised by anything from the Muppets. Ah it’s a new flavour of the month from California https://www.emotionregulationtherapy.com/

Presumably Trish Greenhalgh. I may be misremembering but doesn’t she have some connection to Wessely?

My only experience of zoplicone was a prescription for 7 days it is restricted in the UK