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  1. NelliePledge

    News from Scandinavia

    Is there a source for your statement about Narcissistic Personality Disorder?
  2. NelliePledge

    Fatigue measurement scales

    I wasn’t taking the Fatigue Impact Scale as a perfect fit for ME just on a pragmatic basis as something already tested in MS it seems like it could be a good option to supplant Chalder everywhere that questionnaire is currently used.
  3. NelliePledge

    August 21, 2020 IACFS/ME Virtual Conference

    Not transparent. Some effort to communicate highlights with the wider ME community should be a basic output.
  4. NelliePledge

    Fatigue measurement scales

    I think this is the one I’d seen - even just adopting this would be a big improvement over Chalder’s effort. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3883028/
  5. NelliePledge

    Why patients have difficulties avoiding excessive exertion

    I realise being in a couple or living with family with ME has its own difficulties and I wouldn’t choose to live with others. However I have spent a few days or weeks here and there where I haven’t had to do any cooking or tidying or organising getting maintenance jobs done etc and that felt...
  6. NelliePledge

    Does anyone else experience a pulsating up the back of the neck as a sign of deterioration or having done to much?

    I feel it more in my lower back and pelvis like my muscles are struggling to hold my torso up. But then I’m overweight so it’s a lot of effort.
  7. NelliePledge

    BPS attempts at psychologizing Long Covid

    Maybe some of these vile twitter comments about long Covid not being real will really start to enlighten long Covid people that if they have ME or not they are still in for a load of crap.
  8. NelliePledge

    CBT for ME that is accepted by the community.

    Oh no I have lost the thread I wasn’t saying it should be specified anywhere just an example that not all psychological support involves trying to control people.
  9. NelliePledge

    CBT for ME that is accepted by the community.

    I’m possibly falling into the trap of thinking what works for me would work for everyone else but I genuinely think person centred counselling is worthwhile people with ME trying if they have the possibility.
  10. NelliePledge

    Improving teaching about medically unexplained symptoms for newly qualified doctors in the UK - Yon et al 2017

    Yes @Peter Trewhitt as soon as I saw the title I thought best improvement would be stop the training, get rid of it altogether.
  11. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    If you change the order date on Ocado double check their system hasn’t created a duplicate order - just saying :wtf:
  12. NelliePledge

    Sudden appetite

    Mod note: For technical reasons, the initial post in this thread had to be deleted. The post was from FicaR94: Does it happen to you that you feel full and than suddenly very hungry, without gradual increase? It often happens to me, what would be the explanation for that? ************ Reply...
  13. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Have you shared this with any of the long Covid advocates maybe they will post on their groups?
  14. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Yep no charge. Saw somewhere that finally one of the big supermarkets is looking at (suitably strong) paper bags.
  15. NelliePledge

    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    Interesting idea MEM it could be a simple table showing the title of the study, the names of researchers, the start & finish dates, reported funding amounts and name of funding body, any papers published
  16. NelliePledge

    Coronavirus - worldwide spread and control

    Ok good if it’s less deadly but what if it leaves more with chronic symptoms- obviously this will not be known for some time
  17. NelliePledge

    CBT for ME that is accepted by the community.

    If the manual you have to work to is idiotic it is an invidious situation it doesn’t necessarily mean the individual member of staff is an idiot. they may not know any better because that is how they have been trained and it is all they know. They may realise it is a pile of tripe but they are...
  18. NelliePledge

    CBT for ME that is accepted by the community.

    I don’t think the IAPT staff are idiots they just aren’t professional counsellors psychologists. Or if they are they are over qualified for the actual job they are doing limited to working through the manual in a mechanistic way which must be soul destroying and probably explains the bad staff...
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