I wasn’t taking the Fatigue Impact Scale as a perfect fit for ME just on a pragmatic basis as something already tested in MS it seems like it could be a good option to supplant Chalder everywhere that questionnaire is currently used.
I think this is the one I’d seen - even just adopting this would be a big improvement over Chalder’s effort. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3883028/
I realise being in a couple or living with family with ME has its own difficulties and I wouldn’t choose to live with others. However I have spent a few days or weeks here and there where I haven’t had to do any cooking or tidying or organising getting maintenance jobs done etc and that felt...
Maybe some of these vile twitter comments about long Covid not being real will really start to enlighten long Covid people that if they have ME or not they are still in for a load of crap.
Oh no I have lost the thread I wasn’t saying it should be specified anywhere just an example that not all psychological support involves trying to control people.
I’m possibly falling into the trap of thinking what works for me would work for everyone else but I genuinely think person centred counselling is worthwhile people with ME trying if they have the possibility.
Mod note: For technical reasons, the initial post in this thread had to be deleted. The post was from FicaR94:
Does it happen to you that you feel full and than suddenly very hungry, without gradual increase? It often happens to me, what would be the explanation for that?
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Interesting idea MEM it could be a simple table showing the title of the study, the names of researchers, the start & finish dates, reported funding amounts and name of funding body, any papers published
If the manual you have to work to is idiotic it is an invidious situation it doesn’t necessarily mean the individual member of staff is an idiot. they may not know any better because that is how they have been trained and it is all they know. They may realise it is a pile of tripe but they are...
I don’t think the IAPT staff are idiots they just aren’t professional counsellors psychologists. Or if they are they are over qualified for the actual job they are doing limited to working through the manual in a mechanistic way which must be soul destroying and probably explains the bad staff...
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