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  1. NelliePledge

    CBT for ME that is accepted by the community.

    The IAPT CBT I had was much more like training sessions I’ve had at work where it was about getting basic messages about say health and safety or discrimination or data security where everyone in the organisation had to have the same sessions. Eventually they put these on the Intranet as...
  2. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Of interest possibly I had Ocado booked for Thursday. Was in today refining my order as I try to book orders far ahead on approximate needs then tidy it up a couple of days beforehand when I have a better idea what I actually need. I was offered alternative delivery slot tomorrow pm for no...
  3. NelliePledge

    CBT for ME that is accepted by the community.

    I think these days there’s too much focus on CBT. I had generic low intensity IAPT CBT which I’ve said many times for me was a sausage machine experience. I have counselling I pay for from a counsellor who does person centred counselling which is a completely different experience. If only...
  4. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I’ve mentioned before Waitrose is free delivery minimum order £60. They do have basics range as well so not all their stuff is “posh” food. Their tins & own brand detergents etc don’t seem too different to prices I pay at Sainsbury’s.
  5. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Iceland do free delivery on orders over £35. I’m not a customer so can’t comment on the service but thought that might be useful info.
  6. NelliePledge

    BMJ Management of post-acute Covid-19 in primary care, 2020, Greenhalgh et al

    I thought the one from the neuropsychiatrist was refreshingly open.
  7. NelliePledge

    UK - NHS England online tool and clinics for long Covid.

    @Russell Fleming @EspeMor may be able to help Linda
  8. NelliePledge

    Validation of the Severity of ME/CFS by Other Measures than History: Activity Bracelet, CPET, SF-36. van Campen et al, 2020

    On my worst days I can be down to 6/700 steps in a day. On better days 2-2.5k More than that would be on highly exceptional days such as when travelling. I’ve got online food shopping and am able to drive myself if needed so I am not forced to walk for basic needs other than round my house...
  9. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Hopefully Powis will have this drawn to his attention.......
  10. NelliePledge

    Explore - A Systematic Review of The Evidence Base for the Lightning Process - 2020 - by Phil Parker et al

    I have something in the back of my mind telling me Jackie Aston is Parker’s wife. Possibly from the Advertising Standards complaint.
  11. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Well done @Andy and the DecodeME team. That’s amazing to get so many people interested even before the project starts.
  12. NelliePledge

    UK - NHS England online tool and clinics for long Covid.

    Well that was what someone giving evidence said that’s not necessarily the opinion of the APPG group and I would hope they would be open to input from the ME APPG eta in fact in view of that comment I think the ME APPG have a responsibility to try to build bridges to the CV APPG. I’m sure they...
  13. NelliePledge

    UK - NHS England online tool and clinics for long Covid.

    The Powis letter was drafted by a junior official and reads like a standard letter intended to be churned out to anyone raising concerns. It is not in any sense a response to the issues raised or reflective of the fact that the two ME organisations speak on behalf of substantial numbers of...
  14. NelliePledge

    UK - NHS England online tool and clinics for long Covid.

    how very dare you think any of the eminent “fatigue specialists” would stoop to such behaviour. it’s all unhelpful thinking on your part.
  15. NelliePledge

    Coronavirus - worldwide spread and control

    Because you want everything to get back to “old normal “ and you hear messaging from the government that tells you it is getting back so you don’t look or think any further. So many times on social media people posting crap about let’s stop being negative what’s the good news. So many people...
  16. NelliePledge

    Coronavirus - worldwide spread and control

    A Marks & Spencer’s sandwich supplier in Northampton has got 300 positive cases https://www.bbc.co.uk/news/uk-england-northamptonshire-53762233
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