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Yes me too

I reckon they work on the basis that as long as the study exists it’s adding to their case. However once you actually get reviewers or in this case a Committee that looks beyond the abstract and doesn’t take conclusions on face value the fact the content is so shoddy should work against their case.

Useless non response regurgitating stuff it is clear from his comments that JE already knows.

Yes it is posted and apparently the site displays most recent comments first.

It’s possible to put in redirects when you make changes like that. I can see why they tidied it as it was an odd file name but sending your website users scrabbling round to find the replacement is not good practice.

I think it’s pretty good too for anyone with minimal knowledge of ME.

https://www.telegraph.co.uk/news/2020/08/12/new-zealand-investigating-freight-source-covid-19-outbreak/

Let us know if there’s anything we can do to support your nomination

Agreed but it’s not a bad start and hopefully they could be persuaded to revise it with information about PEM as patients begin to register that the time frame for any anticipated recovery is stretching and get a better understanding of what PEM is and how it affects them in practice.

When I google uk population I get a figure of almost 68 million.

Would be good if she could have a word with a lot of her colleagues to let them know that.

But only gooey if you’re regressed :wtf: eta tripe alert!!!!

As long as the idiots keep wearing the t shirts @Leila at least then you know to give them some extra metres.

Yes i seem to remember there were much better (not difficult) than Chalder existing tools I think there was one that had been used in MS research could be a good step forward to replace it possibly with a few changes to adapt to ME.

I think people naturally want to increase activity when they have a bit more energy and saying it should only be done very gradually over a long period of time - if there is some energy available and not continuing if symptoms worsen isn’t anything at all resembling a mechanistic PACE style...

A fair point @Invisible Woman i think it can be dangerous to assume that those with no experience of ME understand what very gradual means. For clarity it would be better to give an indication in terms of periods of time eg saying you’re looking at very gradually over several months rather than...

:sick:every time I see this thread title pop up. what’s the betting he’s got it bookmarked :whistle:

The only basis that would be worth anyone’s while is if there was a genuine overhaul of their approach. Of course there’s likely to be some degree of revamping IF the ME guidelines change next year. The battle after the guidelines will be over the manual. And the one after that will be how...

Agreed @SlySaint I suspect the team involved aren’t aware their comments are being exploited in this way. Among a selection of “the cured” the logo is doing a lot of dubious validation there. Maybe you should email the biobank team to ask them to raise it with their colleagues. Does Parker...

come on. What you’re really saying is it’s positively iffy. Innit