Search results

Hopefully Carol Monaghan and ForwardME charities have picked up on this and are contacting him. @Action for M.E. @Russell Fleming @EspeMor

14k plus in a week is pretty damn good

It depends on the group leaders. The pace lite message is subtle. I only fully understand some time afterwards that despite being aware of issues with GET I thought I was avoiding any pressure nevertheless I had increased activity rather than adopting exercise. Two aspects. One I had done...

Fair point

Unless it is someone who is prepared to be an agent of change doing a bit of challenging the status quo from the inside.

So it is indeed completely useless - at least a bag of tripe has a potential use

Ok not as helpful as when a comment is added and you can retweet that but good her followers may have seen.

That’s the AFME tweet not Miranda Hart’s

It’s hard to read full stop for me. The ME Association magazine is on paper and I struggle with that. I don’t see why single column would have smaller font size. Products designed to be printed out and read online should all be designed to accessible - there are guidelines on how to do...

So they are weasel wording round the issue that @dave30th highlighted

A bit selfish but I think I’m going to pass.

ME Assn insist on using columns :banghead:

Probably posted that tweet to get a buzz from getting a couple of responses and people actually reading their tweet for a change rather than tumbleweed

No problem they call it the swab test so that’s fine I hadn’t gone on to the website to look at any details possibly this is all explained there.

So did you have to do both nose and throat for the same test - the swab test consists of two separate swabs?

Yep that’s in the letter it’s pretty comprehensive.

Ooh good point @Wonko they should be doing a different study. All/some of the folks who have suspected Cv should be asked to do both.

I’ve had a letter asking if I will take part in a study by Imperial College London comparing two home tests swab of nose & throat vs saliva. It says the swab ‘May cause some mild short lived discomfort’. I’ve heard that it’s quite unpleasant. i feel like I should do it as I’ve been asked...

Blimey that sounds really good. Congratulations to all involved:thumbup:

Think I will have to order a suffragette badge for the avoidance of doubt ;)