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  1. NelliePledge

    Clinical History Segment Extraction from Chronic Fatigue Syndrome Assessments to Model Disease Trajectories , 2020, Chalder et al

    Gone into competition with Kimberly-Clark well known manufacturers of top quality paper products @rvallee
  2. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    @Andy Sonya C has tweeted on her personal twitter yesterday that 3300 signed up in the first 12 hours sorry no oomph to search for it. I think I saw it retweeted by @Simon M but possibly it was someone else
  3. NelliePledge

    Tremors all over, pins and needles in hands and feet

    I am mild/moderate I have had just a handful of experiences of tremors - internal shaking inside my torso and I eventually identified what I think was provoking them which was low dose of pregabalin I have on prescription. Tremor is a common side effect. Obviously everyone is different and...
  4. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Ooh good comms angle down the line:thumbup:
  5. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    I’ve shared the guardian article on Facebook but also got a bit carried away and pinged it to most of my friends and family on messages. Never done that before but I feel this gives me a really positive message that I can use to highlight ME. Feeling chuffed. As well as the actual research...
  6. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    yes very much agree I don’t even understand what point he’s trying to make about post covid-patient activists it seems to imply ME people will join the ranks of post covid folk which is a bizarre way of seeing/putting it.
  7. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Yay @Andy and the team finally some decent coverage in the grauniad
  8. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Cheers @wigglethemouse i got overexcited to get it posted and failed to tag @Andy and @Chris Ponting thanks :thumbup::thumbup::thumbup::thumbup:
  9. NelliePledge

    Coronavirus - worldwide spread and control

    On the same basis that drivers seem often to drive at or 10mph above the speed limit presumably some people are taking the social distancing as the max they have to do and approximately at that - especially with all the ‘if you can’ caveats in the messaging. Also since reduction to 1m has been...
  10. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Moderator note: Please note: at this point only people from the UK will be eligible to participate in the study. However people from anywhere, with or without ME/CFS, can register their interest in receiving updates about the study. People who register will receive information about...
  11. NelliePledge

    Attentional processing and interpretative bias in functional neurological disorder, 2020, Moss-Morris, Chalder et al

    Yep their research is like getting a homebuyers report on a property you’re looking to buy it’s 95% generic with a few words changed every time to “tailor” it.
  12. NelliePledge

    UK: Physios for ME

    Yes exactly this - when I saw it was a comparison that’s what I thought it would be - I was rather befuddled by the skipping around trying to see the read across or lack of.
  13. NelliePledge

    Open MSc research concerning Chronic Fatigue Syndrome/ME and pregnancy decision making. Being undertaking at Cardiff Metropolitan Uni

    Agree the age limit is odd seems to biased towards getting views from women who decided to have children rather than those who decided or were unable to........
  14. NelliePledge

    Attentional processing and interpretative bias in functional neurological disorder, 2020, Moss-Morris, Chalder et al

    The title blatantly gives it away interpretive bias oh Yes indeed that’s what you and your cronies whole ethos is based on - your own interpretive bias
  15. NelliePledge

    Well known people reported to have Lyme Disease.

    No I believe he will be known by some he’s been a host on some reality tv shows that Have been shown here. Oh dear yes I realised after American idol is in the post. It has been shown here.
  16. NelliePledge

    e-coli infection and leaky gut

    :hug::hug::hug::thumbup:
  17. NelliePledge

    Webcast: (Medically Unexplained) Physical Symptoms: A Scientist Practitioner Approach June 8 Trudie Chalder

    Some patients do, others don’t get it and take what they are told by doctors as the gospel. Like what do you actually do when someone tells you they have Fibro and they also have a diagnosis of FND which their doctor tells them is the umbrella term covering Fibro and ME/CFS. I did nothing in...
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