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Shouldn't the title be "Prevalence of two genetic diseases in ME/CFS patients"? There are many genetic diseases, more than two of which can appear at times similar to ME/CFS. To me, at least, the title suggests all genetic diseases.

I think there may be merit to an Office of IACIR. But this should not be business as usual in terms of selecting the researchers who work there. I think a well-vetted patient task force should be formed that has a large amount of influence into who populates that institution in terms of...

They should be able to tell us. They should have all rickettsial diseases well-characterized by now. They should have unquestionable yes-or-no diagnostics available anywhere any time Rickettsia falls into a differential diagnosis. You can replace "Rickettsia" with any number of infections...

Supposedly Willy Burgdorfer was convinced that what was making all those people get and stay sick back in the late 70's was Rickettsial. No one is really clear on why he changed his mind suddenly to a Borrelia spirochete since he found both in virtually all the same samples from sick...

I know some viruses have a tropism for tissue, e.g. influenza A toward the lungs, but I'm not sure about traces that serology would detect. I do know, however, that some bacteria are tissue-tropic and traces are next to impossible to find in the blood and waste. PCR is hit or miss. Antibody...

When someone says not to test for viruses or bacteria or parasites, it makes me want to test for those all the more - especially in tissue, which someone once said not to bother testing. I wonder how many patients were in this cohort, and what their demographics were. Did they only test for...

As far as I can tell, AGS as a vector-borne disorder has only been identified and reported since the early 2000's. I wonder how long it was around "infecting" people before that? If I won that dark lottery, I'd want to know.

Lone Star ticks are aggressive. My understanding is that they don't just quest by waiting to latch on; they actively hone in on animals and go after them.

Good piece. You can see how he earned a Pulitzer. The Atlantic is a good vehicle to promote our truth, at least with a portion of the general population who will see it. Whether they will remember it I don't know. I'm more concerned about the greater medical community, who if exposed to the...

Fort Detrick jumps out, of Eight Ball infamy. What with Wuhan Labs, the irony is a slap in the face.

I've read that version as well. Speaking of depressing, using the word "proven" in a Lyme context is dicey usually even in the most stalwart studies. It shouldn't be that way after half a century.

"There's "no evidence " debilitating but common symptoms she's had for 15 years are driven by Lyme." Well, technically not correct, if I'm reading the article right. She did test positive for Lyme, which is a form of evidence (can you imagine if she'd tested negative what people would say if...

Yes. But as is frequently the case with ME/CFS, things can get complicated very quickly in Lymeworld. First, when I talked about a vaccine wagging the Lyme dog, I was referring to reports that diagnoses of chronicity with Lyme might interfere with getting vaccines approved. As I understand it...

Frequently, it's living with tick-borne diseaseS. It's rapidly become a package deal. As for whether or not a Lyme infection is actually gone, there is literally no way to know. None. An embarrassing failure. You also have to deal with more prevalent incidence of failed treatment when not...

If pathogens are involved, certainly if they persist and are causal, then that becomes the playing field, and identifying them is essential. Diagnostics need to re-invent their industry, or at least recalibrate it. Like most of medicine, diagnostics need an overhaul. And researchers cannot...

Grim article. Smacks of catastrophizing to me. Does BMJ keep an open mind about balance pieces? Something like"Top Ten Reason Some Are Whining About The Nice Guidelines"?

I wonder how doctors' evaluations might change over years if the patient morphs from one with typical issues to one with chronic issues that the clinician cannot help.

I test positive for babs, and babs purportedly can impact platelet counts, and my platelet count is usually low. I bruise easily and frequently. Some bruises I've had for years. This is a relatively new issue for me. So is testing babs-positive ( a few years). But that's me. So Babs aside, I'd...

On paper, an NIH division dedicated to examining chronic infectious disease sounds appealing. Apparently it has the support of several people who have my support, e.g., Lorraine Johnson and Dorothy Leland. The whole safety in numbers thing resonates with me, for sure. I'm curious as to how the...

Who said anything about inventing anything? I fail to see how "conspiracy" hasn't devolved into a sad and twisted cliche any more than EBM. Again, I'd let the discussions carry themselves where they will. It's a forum. Once we pre-emptively begin deciding what is truth or not, I fear it...