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    Myalgic encephalomyelitis/chronic fatigue syndrome: an overview of current evidence 2023 Ludwig et al

    I wonder if this is the literal translation. If so, it's strikes me as oddly hostile and disparaging for a disinterested scientific paper. Is there even such a thing as "flabby muscle"?
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    Myalgic encephalomyelitis/chronic fatigue syndrome: an overview of current evidence 2023 Ludwig et al

    Kiss my ass. We've decades of this sort of bullshit. History enough to show it results in little more than unrelenting sickness and despair for millions.
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    (CDC) Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2023

    No, wrong question, imho. Fatigue is a sidebar, same as it is with the flu or cancer or MS. I would be loathe to qualify ME as a "fatigueing illness," no slight to Straus and company. God the CDC has a dark history in our circles. Focus on the package and PEM.
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    (CDC) Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2023

    For sure. And it's not just pwME. It's LC and Lyme patients as well. There's history for you. It speaks to the democratization of medicine - the majority count more than the minority. We are literally talking millions of sick people here that are being kicked to the curbside, but our maelstrom...
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    Dynamic white matter changes in recovered COVID-19 patients: a two-year follow-up study 2023

    There's a template for this speak. There's a history. And it's not like it's a dead language. It's invoked whenever it serves as a means. Well, in that sense, maybe it is like a dead language, Latin. Only this language seems familiar. Is familiar. In part maybe because it's not as old as...
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    Dynamic white matter changes in recovered COVID-19 patients: a two-year follow-up study 2023

    They would also seem to provide an objective basis for NOT qualifying these patients as "recovered". Somebody please equip every medical researcher with a current dictionary.
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    Tick-Borne Disease Epidemic in Ireland?

    A few years back I had a discussion with an IDSA heavyweight who had issued a paper claiming there was no Lyme in a particular southern state in the US. In the paper he noted many state residents who had tested positive for Lyme with the vaunted CDC 2T, and his position was those must have been...
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    UK: Workshop - CBTReach - CBT for Persistent Physical Symptoms, Chalder - 9 May 2023

    Interesting choice of references (reference material) for the workshop. :)
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    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    There should be laws against gaslighting. At the very least, there should be a slew of required ethics courses in medical school which explain in screeching detail the harm levied by those who gaslight. These courses should be mandatory for any psych wannabees - much in the same way courses...
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    Tick-Borne Disease Epidemic in Ireland?

    https://invisible.international/the-tick-borne-disease-epidemic-in-ireland-a-call-for-more-research/ Notes under-counting in UK and Canada as well.
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    Experience with LDN? low dose naltrexone

    I've taken LDN a few times over the years, with doubtful results. Still, there are so many reporting improvements with it that a smart trial would, I think, be a good thing. However, I cannot help but file it a bit with an arguably similar approach of treating Lyme with Plaquenil. Are we just...
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    Self-reported symptom burden in postural orthostatic tachycardia syndrome (POTS): A narrative review... 2022 Moss-Morris et al

    Lot's of money in diagnostics or similar tools. I wonder if some questionnaires are patented or if the makers of the questionnaires receive royalties of a sort. What an evil mix. I have POTS and I almost feel assaulted after reading this. They slip in one or two words like catastrophizng and...
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    diseases which resemble ME/CFS --- Lyme --- Organisations which may work with ME/CFS groups

    Bartonella for sure. Arguably Babesia, too, although this more closely resembles Long Covid in many instances. Most Borrelia iterations, e.g B Miyamotoi vs B Burgdorferi. As for organizations which represent them, any Lyme org like Bay Area Lyme or Lymedisease.org or GLA (Global Lyme Alliance)...
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    Clinical experience with the α2A-adrenoceptor agonist, guanfacine, and N-acetylcysteine for...cognitive deficits in Long-COVID, 2022, Fesharaki-Zadeh

    Sure. It certainly snagged my attention. The cynic in me says just because there is an established treatment for something, sadly, in today's medical world, that doesn't necessarily mean it works - especially when the brain is the "something".
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    Clinical experience with the α2A-adrenoceptor agonist, guanfacine, and N-acetylcysteine for...cognitive deficits in Long-COVID, 2022, Fesharaki-Zadeh

    A) Only 12 patients. A third dropped out. B) Substantial benefits? Qualify that, please, objectively. Where does placebo appear in this? Not placebo-controlled, you say? Comeback in 12 months and revisit, please. C) And one "post-Lyme" patient reported improvement? I'm sorry. Yale and Lyme - any...
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    USA: National Institutes of Health (NIH) intramural ME/CFS study

    What rubs me the wrong way here is that, perhaps inadvertantly, he's made a statement he cannot factually demonstrate yet. We may all of us in each of these diseases, have compromised immune systems which generate our symptoms. This may be what they ultimately prove. But I can tell you they...
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    Which scientists and research groups would you want to bring to the ME/CFS research field

    Johns Hopkins not too long ago released a Lyme study that identified genes in Lyme patients that evidently were activated by Lyme as immune responses, or something along those lines. So these were genes that are coded to help fight infections, if my understanding is correct, and the effort is...
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    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Yeah, so that's not even a thing, not even in Bethesda at the NIH. It's not a thing anywhere. How optimistic yet unlikely it would play out so neatly. I would find it unsettling if he actually used this wording.
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    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    Seems to have worked out in stellar fashion for the BPS folk. Although to be fair, they probably are well aware of the evidence. They just ignore it. In many ways, it appears for some of that psych crowd that it's not so much about proving their position's merits with science, rather doing a...
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