Search results

Im sorry I wrote so ambiguously. There have been some good tests (imo) that at least seemed to have merit (one a PCR, one urine-based, one culture-based), but friction from within the system, including competing tests from different earlier patent holders, kept the current testing favorites...

The rehab fan club:

Symptom similarities may not be as remote as you might think. But I agree, it's a jump.

This particularly strikes me as odd. Cohort participants have to have been sick for at least six months. If that is a requisite, then aside from swollen knees - which by no means happens as frequently as many assume - what symptoms would not be subjective? The EM will have usually resolved on...

There are a lot of horses in this race, a lot of patent holders that are in positions of influence - which is imo a drag on progress.

@CRG, this is a very good review. Their conclusion is summed up nicely in the last paragraph: "The limitations of the array of assays and test methods currently in use to diagnose LB strongly underline the need for more research to develop new clinical markers and better diagnostic tests to...

They cannot even do this definitively unless they culture the EM or ACA. Who are the misinformed here?

So what conclusions can we draw from this? Not this. Instead, how about realizing that Lyme diagnostics suck, many people who get sick know this (they are usually not as dumb as doctors consider them), and they don't trust the tests they're given by their GPs. So lets invest some serious...

I'm not sure sitting in the back of the bus is the right way to proceed.

Maybe, @Creekside. That's an awful lot of misperceptions, though, an awful lot. Many of us have a host of symptoms. It seems like a complicated way of explaining what's going on. But perhaps it is the right way. My money is on persistent infection, or busted immune system. I get too many...

Lyme has been found in the brains of many patients. Perhaps the most famous was Vicky Logan. The medical system doomed her, and denied her the only thing that was keeping her alive: abx. And yes, the only real way to prove it is autopsy, as is it did with Vicky Logan even though I think they had...

Kind of like false pain beliefs. Or false illness beliefs. You wording is worrisome because of obvious reasons.

Symptoms as perceptions of feelings? Perception of pain? Perception of lethargy? Without physical abnormalities that typically cause them? This framing is troublesome for me.

Technically speaking, both. A couple things to unpack here. First, testing extra-well for persistent infections is just not really a thing with some pathogens, including many borrelia species and bartonella strains (ever been around a cat?). Babesiosis is no cake-walk either. And if you...

If there are antibodies to latent or asymptomatic viruses found in saliva, would that suggest that some of those reactivated pathogens that are communicable via saliva may now be contagious? ETA: They mention ME/CFS patients had low functioning NK cells (I think the word they used was...

Go Medicine. You rock.

We know of a few bacterial and parasite infections that persist in the face of treatment, and that are commonly failed by diagnostics. Borrelia comes to mind, as do bartonella and babesiosis. For at least a portion of ME/CFS patients. persistent unresolved infection should remain on the table.

I suppose it frequently depends on which parts of the brain are impacted. I would think it's usually involving areas of the brain that effect both symptoms, so it seems as if they are related - and, in fact, they may be in the sense that they both may be downstream brain issues.

Long Lyme? Amy Proal used that re-branding, I think. To me it's like saying Long Syphilis. It just isn't right.

In a word, ego. Hubris is wrecking the discipline anyway. There's no reason I can think of that that deficit wouldn't manifest as a juvenile need to set us straight in our own back yard.