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I'm confused by this response. To me it sounds uncomfortable similar to IDSA Guidelines from 15 or so years ago that seemed to many to compare symptoms of late stage/chronic Lyme to (I'm paraphrasing) what many healthy people experience normally as the aches and pains of life. If you've LC, or...

Title aside. There is an assumption embedded in "post-infection" that also leads the reader. Set aside the assumptions and medical politics and let the Science (theory) write the article. For instance, I might as an alternative to post-infection try post-acute illness. But agreed, pretty good...

Drexel University. They've had Judith Miklossy speak at their conferences in the past, so they should have a good familiararity with spirochetal infections of the brain, in particular.

I wonder what the proximity of Respect and Shame is to Fear and Loathing. I'd argue a stone's throw.

The authors in the paper write "Patients who had active/recent Lyme disease as a cause of their symptoms were determined based on established criteria." Whose established criteria? So, is this a retrospective appraisal that assumes a contested diagnostic (probably the STT, that is at the basis...

Radicalized on Lyme groups? As in, forums and such? Does this not sound a bit uncomfortably familiar on any level? I suspect many of them know. ;)

I wonder if VEGF is considered an immune marker, and if they looked at that seeing as how low VEGF values can be, I think, associated with cognitive decline.

Maybe I can field part of this question, at least the Lyme part? As with most things Lyme, it's best to look at history. Before PTLDS was pushed, Post-Lyme Disease Syndrome was promoted. The push-back from the Lyme patient community was loud and swift, and it seems that the "compromise" was...

Just from what you posted at top of thread.

Post-treatment Lyme? Seems political straight out of the chute. Doesn't bode well.

ME/CFS, Fibro, PTLDS, Mast cell disorder, dysautonomia, and now long-haulers. What a fraternity. Good to know the CDC has "established symptom management approaches". No worries.

A number of ideas race at me, none of which is likely good enough to capture the essence: Dereliction of humanity Patient betrayal Failure to think outside the box Failure to empathize Berlin Wall Syndrome, i.e., willingness to shoot innocents to help superiors or State Douchebaggery...

Do medical texts teach "post-acute"? Is that a thing? Or does it go a)Acute, b)Chronic, with recovery/convalescense/or death coming after either a or b? Acute = time limit. Chronic = indefinite.

My limited understanding of the immune system says first 30 days of infection, one's IgM antibodies are at play. If the infection is not resolved, those antibodies give way to IgG antibodies. As our medical culture is primarily focused on acute infections, clinicians are taught that IgGs are...

Yes, good stuff, and for us, unsurprising. But try telling your doctors or friends or family members that exercise can and does actually hurt some people, and although they may Yes you to silence you, they don't believe it. Exercise is a Linus blanket. It took generations to get this shit...

What constitutes a consensus? 80% or higher? Cerebral hypoperfusion as demonstrated by SPECT scans (vs MRI and PET), perhaps? Not sure about this as SPECT scans are more or less frowned upon in US for last few years...

You're welcome, healthy world. Your enhanced immunity is our gift to you. :)

Pathogens of all sorts would be considered for my list of ME/CFS causes, just as they would be for MS. I fully would expect multiple infectous agents to be behind discreet ME/CFS cases, i.e, enteroviruses cause ME for some, other viruses for some, bacteria for some, parasites for some, etc...

This.

Merged thread https://www.washingtonpost.com/world/2021/05/12/canada-new-brunswick-brain-disease/