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Cannot - or should not - extrapolate from n=1. There are doctors projecting their biases through potential misdiagnoses in many medical realms. It's just unfortunate for patients when it happens because it can provide fodder for self-interest groups (eg BPS) whose goals do not necessarily align...

@Dolphin , you really trust any researcher who refers to ME/CFS as chronic fatigue? :) Also, do you know he's not referring to Armin labs? He's likely referring to IgeneX which uses two bands banned by the CDC because they are allocated for vaccine use, and that these two bands are the most...

One way to get a feel for its prevalence is by checking out canine incidence. This is one method by which scientists are mapping Lyme's spread North deep into Canada. I would think they'd have these numbers throughout most of Europe, obviously including the UK.

Yeah, I'm going to have to call foul on that one. If it's true, it is true on an exceptional basis. What do you imagine one of the main points of this article is all about? It's that symptoms of Lyme and ME/CFS frequently overlap. Lyme has many symptoms that can be confused with many diseases -...

Right, @Medfeb , and there's the rub. According to CDC criteria, these Lyme patients still qualify as having active Lyme, ie, they are CDC Lyme compliant IgG positive on a Western Blot. Everything after that is innuendo and speculation, i.e. the post treatment qualifier which assumes Bb has been...

Where in the world did you get that idea? People who thought they had Lyme never had symptoms of Lyme? What? Of course chronic Lyme has to be late stage Lyme - it's definitional. And most people with chronic Lyme don't present with symptoms of late stage...? Which symptoms? You mean classic...

I must confess this study always struck me as a bit over-the-top obvious. Kinda cool at first glance, but once you get past who the authors are (no small feat), and really read the study, all it basically says is - and I am paraphrasing liberally - we can tell the difference between sick people...

Not wholly accurate, but I agree with the gist. Some people know a campaign of misinformation and mischaracterization has been going on against Lyme patients who are not cured. Indeed, some stalwart anti-Lyme peeps have gone so far as to declare - and propagandize - that chronic Lyme patients by...

Pretend it's not a thing and embrace repackaged imported propaganda to that end? :)

And those giving out dubious CFS diagnoses.

This article is pretty much just downright appalling, imo, but this sentence stands out: "Lyme disease can occasionally cause long-lasting symptoms...but this is rare." Ten - 20 percent of 400,000 cases annually in the US alone, that do not improve with mainstream treatment protocol, is far...

Friedman you all know. Bransfield is a former President of ILADS, so he is fairly prominent in the Lyme community, at least on the psych side. He is sort of like B Fallon of Columbia U -also a psych - in that regard.

SPECT scans can be used to demonstrate blood flow in organs, including the brain. It brings to bear 3D imaging of organs functioning. It has been used diagnostically back in 90's but fell out of favor - why, I'm not sure. I think it should be used at least complementary. Personally, I think the...

I am not having a particularly good brain day, so forgive me if I am wrong, but I want to say that researchers somewhere in Europe tied the rash into what eventually was labeled Lyme many years before. Many years. I'm not talking about ACA either, I'm talking EM. I could be misremembering...

When you say ECM you are talking about Erythema Migrans rash, yes, @chrisb ? !983 was a watershed year for Lyme papers, and not in a good way. So, numbers for the bulls-eye rash are all over the place. It was considered so prevalent and specific to Lyme that to this day the mere appearance of...

Lot of empty vessels out there. A lot. As far as I can tell, they float just fine. But hey, I know all too well what passes as opinion - or even dogma - in some areas can be crap, so I hear your concerns.

Interesting location. (@chrisb) I think often times when it comes to brain inflammation people conflate the appearances of acute brain inflammation, like in encephalitis, with brain inflammation in chronic conditions which I suspect is less overt. I think this holds true with many commonly...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3887148/ https://parkinsonsnewstoday.com/2019/03/11/parkinsons-study-new-repurposed-therapies-brain-inflammation/ I can keep posting additional links if you wish.

They don't have the tools to measure our cognitive difficulties. There is something frightening when a group of people have the ability to take patients' reality and fictionalize it simply because they cannot accurately measure or identify it. I pity these people if comprehensive post-mortem...

Diseases like Alzheimer's and Parkinson's are now considered inflammatory diseases of the brain. I suspect eventually so too will ME/CFS