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I think the most likely way we'll get a good drama will come from people getting ME via Covid infection and discovering the whole story, particularly doctors who had no idea they had been taught the wrong thing. Sadly, it's just as likely dramatists might pick up a Paul Garner story or some...

I wouldn't guarantee my info is correct either. :laugh:

The career change happened by her choice before the whole XMRV fiasco. She met her husband and moved with him and became bar tender in a small sailing club they joined. The XMRV thing was a result of her meeting the very wealth Whittemore family at the sailing club and getting to know them...

She denies he died of Covid and considers his death certificate is wrong.

I've filled in my questionnaire too, and my daughter has done hers. A very well set out questionnaire. Thanks as ever to the DecodeME team. There was only one question I had trouble answering, it was something about whether I sleep more or less when in PEM. I think I start off sleeping less...

This is way outside my knowledge. Perhaps you need to consult a legal expert to get a legal document drawn up. Would it be possible for you to wear around your wrist a robust wrist band/bracelet with a number to call in emergencies where your DNR etc information is readily accessible. People...

It may be simply that the petition has only just started, and DwME haven't had time to discuss and make a decision on behalf of the organisation yet.

I didn't watch the dramatisation, but had the same thought. Wouldn't it be amazing to have a really well done drama showing the devastation caused by GET for pwME. But then I realised that unlike the post office situation where it's clear as day that people accused of theft on the basis of a...

I'm not sure what you mean by a 'vain article'. The article does say what evidence he's basing it on - the rapid rise of the new strain around the world, and the levels in sewage which is as I understand it a well established way of detecting infections in a community. "By wastewater levels...

"What time, effort, and resources does it take to do this activity at the level you rated?" I could make no sense of this question, particularly the time part, as a lot of the activities listed would only be done for a short time and not every day. And what does it mean by 'resources'?

I've just checked and it is indeed the Bell scale. I had forgotten it was so bad. https://www.oiresource.com/cfsscale.htm

I completed it, but had similar problems to Simon. I also had a problem with the severity level question. In the end I opted for this one: But it makes no sense to me. If someone is confined to bed most of the day and housebound, as I am, how can it possibly be right to assess overall...

The third article From the Lab to Evidence Reviews to Communication (Sicily Conference Part 3) Starts with a short section about animal experiments and problems of evidence often not being useful for humans. The rest of the article is about Cochrane. Quotes Jordi Pardo Pardo, interim chair of...

The first article: A View From the Sicily Evidence-Based Healthcare Conference The article focuses on discussions about living reviews and guidelines, particularly with reference to the pandemic. There were apparently strong disagreements on some aspects. Hilda expresses disagreement with John...

From the second article this part caught my eye: Is Critical Appraisal Training for Clinicians Doomed? (Sicily Conference Part 2) Quote: That opening lecture was by Gordon Guyatt – the GRADE pioneer, who also coined the phrase “evidence-based medicine” back in the early 1990s. It was just a...

I have just read Hilda Bastian's three articles on this conference on her Absolutely Maybe blog posted in November 2023: A View From the Sicily Evidence-Based Healthcare Conference Is Critical Appraisal Training for Clinicians Doomed? (Sicily Conference Part 2) From the Lab to Evidence...

I think a public apology that specifies what they got wrong and what they think should happen next from someone so prominent in the world of medical research and care is important as an example to others who should also consider whether they have been and maybe still are getting it wrong about...

I have just listened. Thank you @dave30th and thanks to Ed Yong. One thing that stood out for me was the interesting balance between the research and journalism that David has done on ME/CFS mainly focused on the false psychogenic model and bad research and its impact on patients. David has...

Perhaps a reflection of who is on Twitter/X these days, with those supporting misinformation dominating.

In a long list of comorbid conditions out of 53 patients: Severe chronic fatigue/CFS 15% (8)