Search results

I don't think that study showed understanding of PEM.

I had forgotten or not realised they only managed 17 patients. I had it in my head they did 27 which is bad enough. Add to that and some weren't well enough to do all the tests, and you have nothing. I really feel for people who have been relying on this to bring good news. Such a let down. It's...

I think what will happen is the old harmful review will stay in place for several more years, with another useless editors note attached saying a bit more about it being due to be replaced sometime. The process for getting a new review to publication and past all the hurdles looks likely, from...

Surely it's a spoof. No one could seriously write that way.

There hasn't been much in the Inquiry so far on Long Covid. The first module a few months ago was on pre pandemic preparation, and the current one is focused on the initial response in the first few months of the pandemic.

I suspect the complaint was from all the 51 signatories of the anti NICE brigade paper led by White. And it will have been long and detailed in order to cause as much delay as possible. NICE had the sense to see through them. Sadly Cochrane is in their pockets.

And worse than that, the whole project is shut down for, it seems 2 years, by the fact that complaints were being considered in Cochrane's ridiculously beaurocratic way. Considering a complaint should have had no impact on the process of preparing a new review proceeding. It's utterly ridiculous.

So why didn't they tell us that they had already had a complaint asking for the 2019 review to be withdrawn and had taken a year to consider and dismiss it?

Moved from the petition thread. Quite a lot to take in. From a first reading, delays were caused by first the pandemic taking some of the Cochrane employed people off this project onto Covid related projects, then a major complaint from the supporters of GET about the plans for a new review, as...

The endless need to keep publishing and to keep providing data for postgrad students to use for their 'research'. What a waste of everyone's time and money and so unethical.

I think the bit about not knowing whether he had ampligen or placebo rather defeats the purpose of making any social media report on effectiveness. We'll have to wait until the data is unblinded and the results are published.

I agree the introduction of 'push and crash cycle' into this section is unhelpful, though at least it's better than 'boom and bust'. PEM does lead to reduced exercise capacity for a short or long period, but the reduced exercise capacity is always there, whether you've pushed and crashed or not...

Brilliant, well done, @Grigor. Thank you.

You can also comment.

I'm afraid such motions are ten a penny. Simply an MP attempting to garner votes from their constituents by highlighting local projects. I doubt it will achieve anything.

I'm not clear whether this is a national or international project, and if national, which country. I am very much in favour of such projects if well done, but a bit concerned about duplication of effort with several people developing similar apps, all with different diagnostic, symptom and...

They are including people with PEM from other conditions, not just LC. I wonder whether predicting onset of cognitive PEM in time to avert it might be helped by a mix of the physical activity tracking and heart rate, heart rate variabllity and correlating that with symptoms including cognitive...

Short section on CFS (paragraph breaks added): Chronic fatigue syndrome (CFS), recently renamed “systemic exertion intolerance disease” (SEID), is a syndrome that has been defined in various ways, without any uniform etiology, and with varying diagnostic criteria. According to most...

If that's true, they've seriously messed up their diagnoses. We were worried about Walitt who was put in charge, as he had a reputation of not believing ME is a physical disease and they invited Shorter to give a talk to the research team. Again I was concerned when they published their badly...

I haven't watched Location for years, finding KA increasingly irritating. I did watch this episode and agree with her that it was a pity they only allowed her to mention fatigue. Sad to hear she's crashed badly since moving. I did the same with our last move.