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That short article doesn't really tell us anything. It's just a fundraiser.

So irresponsible. Why do they keep doing it? Answer - to make money from desperate people.

Looks like Jason Busse is a Chiropractor with science degrees including PhD as well. Not a medical doctor. Treats people for pain and fatigue.

I'm not on Twitter any more. Has anyone linked this thread to inform them they are promoting rubbish?

Thread on the paper in the journal Cell referred to in the artice: Serotonin reduction in post-acute sequelae of viral infection, 2023, Cherry et al

It's good that they are challenging this research, but I don't think there's any research evidence to support this: I know the NICE guideline says it can be offered, but I don't think it should be repeated without the warning that it can also cause harm, as it did to me.

We have several threads on papers by Jason Busse who is on the author list and presumably the professor supervising this research.

Oh good, let's invent another 300 questionnaires and write another paper about them. And another And another

What a bizarre article.

This looks like a rather poorly designed student project. There is no data given about which treatments patients attributed their recovery or improvement to, no questionnaire or other data on how sick they were and how they are now, no info on how long this claimed recovery or improvement has...

Of course it's Paul Garner. It seems he is dedicating his retirement to getting as much published as possible to prop up his fantasies that if only we'd all listen to people who have 'recovered' we'd all get better. Any idea of scientific evidence seems to have been expunged from his brain.

Merged thread Patient perspectives of recovery from myalgic encephalomyelitis/chronic fatigue syndrome: An interpretive description study Zara Hasan BHSc, Cassandra Kuyvenhoven PhD, Mehreen Chowdhury, Lana Amoudi BHSc, Dena Zeraatkar PhD, Jason W. Busse PhD, Marina Sadik MA, Meredith Vanstone...

The link given takes me to 'page not found'. This link worked for me: https://community.cochrane.org/new-cochrane-privacy-policy#:~:text=data%20is%20aggregated.-,Disclosure%3A%20Do%20we%20share%20your%20personal%20data%3F,giving%20your%20details%20to%20us.

The 2020 edition seems to have shrunk that section https://academic.oup.com/book/35444 It's now headed Somatic symptoms and related disorders with chapter headings: 129 Deconstructing dualism: The interface between physical and mental illness by Michael Sharpe and Jane Walker Abstract...

The 2012 Edition chapter on CFS is in a large section headed Psychiatry in Medicine, with chapters including somatoform, MUS, somatisation, conversion disorder, hypochondriasis, factitious disorder and malingering, neuresthenia etc. https://academic.oup.com/book/24770

New Oxford Textbook of Psychiatry Second edition published 2012 https://academic.oup.com/book/24770 Chapter 5.2.7 Chronic Fatigue Syndrome by Michael Sharpe and Simon Wessely https://doi.org/10.1093/med/9780199696758.003.0133 Abstract (paragraph breaks added) Chronic fatigue syndrome is...

An example of why the removal of the 2019 review is so important: New Oxford Textbook of Psychiatry (3 edn) published in 2020 Chapter 131 Treatment of fibromyalgia (chronic widespread pain) and chronic fatigue syndrome By Jonathan Price my bolding and paragraph break. The chapter author...

Next thing they will be telling us that sale of icecream going up causes the weather to get hotter.

I had a quick look at the patients' guide to Body Reprogramming. http://www.bodyreprogramming.org/guide/PatientGuide.pdf The theoretical idea seems to be that people who are perfectionists don't listen to their bodies when the are sick, and push through the body's 'stop' signals like pain and...

I have watched Ed's talk. He comes across as such a thoughtful and compassionate person, which is not surprising given the quality of his articles. He tells about how he came to be interested in ME/CFS through a 'friend date' with the author Sarah Ramey, noted above. So he has followed the Long...