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We already knew that a small proportion of vaccinated people are being made sick by the vaccine. It's good that there is research on this, and it's not being dismissed as anxiety etc. This paper does not, however, given any clue to how common or rare PACVS is, as it's not an epidemiological...

I am thankful nobody ever inflicted this judgemental psychological stuff on me.

About their film series: https://www.longcfoundation.org/docuseries more at link So far he's paying for it himself. The organisation is fundraising to help pay for editing etc.

So it appears that the main focus of the foundation is making their film and advocacy. It seems odd for an organisation that says getting to the root cause is vital to base their ideas about cause entirely on viral and spike protein persistence.

Quoting their mission statement (paragraph breaks added) https://www.longcfoundation.org/about Mission At the Long COVID Foundation, our mission is to bring awareness to the public regarding Long COVID & other pandemic related issues, advocate for better testing, trials, & treatments for...

Thanks, @dave30th. One small correction at the beginining. Our first letter was sent on 28th August, not 4th September. It was the petition that was started on the 4th Sept.

Three things strike me about that letter, @EzzieD. First, the suggestion that someone with CFS should be referred to a psychiatrist. Second that Wessely is considered the national expert. Third that people with CFS are described as a 'special interest group', not as sick people.

I have not seen any research or hypothesis by scientists suggesting any connection between bipolar disorder and ME/CFS. Though, as Amw66 says, there could be some genetic predisposing factors. I am not aware of any symptom overlaps in the diagnostic criteria of the two conditions that would...

The claim in the article title is ridiculous. The data come from the FIS-40 fatigue questionnaire which divides into domains: cognitive, psychosocial, physical functioning, and total. If you look at table 2, the only one that showed slightly statistically significant change between before and...

I think in countries where traditional medicine is widely practiced as part of mainstream medicine, it's important that they take a scientific approach to researching its effects. That seems to me to be what the abstract conclusion is saying.

I'm afraid that sounds to me like nonsense, Creekside. I prefer to learn my science from research, not speculation by non scientists. I don't see the point of such speculation unless the person has very sound, up to date and in depth knowledge of biochemistry, cell biology etc.

I think intuition is only as good as the knowledge and information on which that intuition is based. It may work when deciding which colour to wear, but it's a poor substitute for sound scientific understanding, data and evidence for deciding what's going on inside our cells.

oops, sorry, I can see my sentence is ambiguous. I meant I think large surveys about help or harm from health service provided treatments that are administered by health services on the other hand can provide valuable information of the potential for that treatment to cause harm, which is what...

Having watched some of the discussion around this pharmacist's efforts to collect information on Twitter, I share Lucinda Bateman's doubts about its usefulness in finding treatments worth researching. It was noticeable how much people on Twitter were egging each other on to try the latest fad...

I have just reread the article. It reads like a rather childish set of beliefs based on little more than their personal interpretation of their own experience of recovery and a petulant grumble that nobody is listening to them.

A huge thank you to every one of the 9000 people who have signed the petition so far.

The above short article uses as its source a much longer article on Undark. From a Grassroots Survey to Long Covid Treatment Trials It includes this from Lucinda Bateman:

I agree. Feelings have nothing to do with biomedical science.

Speechless. How do quacks do it. I guess the answer lies in university departments of health sciences or health psychology etc. which seem to be lowering their standards of research to let anyone get a PhD for any nonsense.

Neither Fiona Fox nor Claire Fox is a scientist. Fiona was a journalist before being appointed to lead the SMC, nobody knows why she was considered qualified. Claire was an English teacher before she turned to politics. They spout the nonsense their friends like the Wessely/Gerada duo tell...