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Tweet says: Dr Asad Khan: Dear #LongCovid community here’s an information leaflet for a forthcoming #LongCovid intervention study headed by Trudie Chalder. Avoid this like the plague. Consider writing to the investigators (email at bottom) asking what the intervention is & the science behind it...

New analysis published on effectiveness of vaccines in preventing Long Covid. Thread here: The effectiveness of COVID-19 vaccine in the prevention of post-COVID conditions: a systematic literature review and meta-analysis, 2023, Marra et al

The effectiveness of COVID-19 vaccine in the prevention of post-COVID conditions: a systematic literature review and meta-analysis of the latest research Alexandre R. Marra et al. Abstract Objective: We performed a systematic literature review and meta-analysis on the effectiveness of...

Some posts have been moved to: Germany's Kliniken Schmieder group 2022 report on Long Covid research A post has been moved to: The effectiveness of COVID-19 vaccine in the prevention of post-COVID conditions: a systematic literature review and meta-analysis, 2023, Marra et al A post has been...

Evidence of a genetic background predisposing to complex regional pain syndrome type 1 Samiha S Shaikh1, Andreas Goebel2,Michael C Lee3, Michael S Nahorski1,Nicholas Shenker4,Yunisa Pamela1,5,Ichrak Drissi1,Christopher Brown3,Gillian Ison3,Maliha F Shaikh4,Anoop Kuttikat4,William A...

I think that's easy enough to explain on the basis that I presumably was deficient in the specific ingredient Evening Primrose oil is take for (Gamma Linolenic Acid (GLA), an essential fatty acid that provides the building blocks for female hormones), and you and the other person who had the...

From my experience with premenstrual symptoms, it helped enormously when I found out that there was such a thing as premenstrual depression/emotional lability. I had no idea for years why my moods fluctuated so much apparently unrelated to any external factors. I just assumed I was emotionally...

Type Of Ticket: Virtual Conference Ticket For Patients & General Public: $175 prior to the conference $245 day of the event For Healthcare Providers: $495 prior to the conference $595 day of the event 20.5 Continuing Education Credits

There are some familiar speakers like Ron Davis and Maureen Hanson, and most have US university affiliations. I'm puzzled about the organisers. They are called the 'Foundation for Total Recovery', and all I've found about them so far is this conference.

I took a first look at the consultation document today. I'm a bit bemused about where to start with filling in the consultation as the questions are all about responding to specific changes to specific questions, whereas the points I would want to make are more general about things like the...

I could of course add the obvious conclusion from my own and countless others' experience: ME/CFS is NOT caused or perpetuated by fear of exercise, avoidance of exercise or deconditioning. These hypotheses are so clearly contradicted by my own and others' experience that it would be laughable...

I've been thinking about this sort of article and careers built on this sort of stuff by people with no medical knowledge or understanding of science. What Greco and her ilk are doing is parasitic. She is creating an academic career that feeds off fantasies created by the likes of Sharpe...

I don't think one or another person's experience can possibly give any answers to the cause of their ME/CFS. For that we need high quality scientific studies on many patients. If you explore this forum you will see many papers are published with all sorts of hypotheses. There is also the...

Questionniares were filled in online by about 300 people at about 6 months of self identified Long Covid. The data for their symptoms at 2 weeks after infection were based on recall filled in at the same time point as the 6 months data, not done at the time, so liable to a high degree of recall...

I had a go at reading the whole Greco chapter. I ignored the bits about philosophers or whatever. What I got from it was that she assumes all conditions classed as MUS are basically psychosomatic, and are relatively modern phenomena caused and perpetuated by psychosocial factors. She goes on...

In this case I disagree with you, since it's about biological sex, including sex hormones, though I do agree the terms are sometimes confusing. Here's what I found from the Council of Europe with a quick search:

Podcast Episode 6 Lynne Harris: https://www.emerge.org.au/podcast/episode-6-lynne-harris/

I didn't list all the secondary outcome measures: Observe changes in exercise tolerance and reduced post-exertional symptom exacerbation following incremental exercise Modified De Paul Symptom Questionnaire-Post Exertional Malaise (DSQ-PEM), symptom Burden Questionnaire for Long COVID 53 days...

This was on healthy male participants. The did a knee extension exercise and rated their effort while doing it. They did it 3 times on different days, with one time as the control, and the other 2 with immediately preceding hand grip exercise to make them feel fatigued before they did the knee...

Outcome measures: Primary outcomes: Quality of life, functional status, and post-exertional symptoms. Using questionniares: Health-related quality of life (EQ-5D-5L), & Symptom Burden Questionnaire for Long COVID. At 53 days. Also feasibility and safety data. Secondary outcomes: A long list of...